Advocates for people battling Alzheimer's disease and their families are marching in Des Moines this weekend to raise money for brain research and ultimately, to find a cure.

Alzheimer's is a degenerative brain disease and the most common cause of dementia.

Lauren Livingston, communications director for the Iowa chapter of the Alzheimer's Association, said marchers are trying to raise $500,000 and while the funds are critical, she stressed the point of the event goes beyond raising money.

"I've heard a lot of people who come to the event who are personally affected say that they feel like it's kind of a big support group," Livingston explained. "Where you are getting together with other families who have been through something the same, or very similar, to what you've been through with your loved one."

Roughly 62,000 Iowans suffer from Alzheimer's disease and Livingston pointed out the number grows every year. At least 100,000 family members and caregivers in the state are also directly affected.

The Alzheimer's Association reported the number of disease-related deaths doubled between 2000 and 2021, despite a huge increase in research. Nationwide, 7 million people have been diagnosed, and at least 11 million caregivers are directly affected. Livingston noted money raised during the march will be used to provide services to them, too.

"Services like support groups for caregivers and education programs to help people learn about the disease and what to expect if a loved one is living with it," Livingston outlined. "We're there to help caregivers right now, when they're in the middle of the disease with their loved one."

There still is no cure for Alzheimer's disease but federal regulators have recently approved medications that can slow its progression.


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A farm crisis hotline in Nebraska has seen a sharp uptick in mental health-related calls from farmers, worried about losing access to loans and proposed cuts to SNAP funding.

They fear that it would reduce markets where they can sell locally grown products.

Nebraska Farmers' Union President John Hansen also oversees a rural response hotline, which he said has been flooded with calls from farmers in financial distress expressing serious mental health concerns.

"Every year, there's always somebody in agriculture who is facing very difficult situations, and there's a real need for the kinds of services that we provide," said Hansen, "which is everything from food assistance to bookkeeping assistance, financial management."

Hansen said the Nebraska Rural Response Council, which runs the hotline, helps pay for mental health services for farmers in need.

Hansen figured the crisis hotline would dwindle after it was established to handle calls during the 1980's farm crisis - but said the number of requests has only picked up, especially recently, and jumped from 4,500 calls a year to more than 7,000 now.

"We can tell from the severity of the calls and the number of calls that we are seeing," said Hansen, "for really the third year in a row, cashflows that just don't quite work."

The U.S. Senate just passed a resolution, co-sponsored by U.S. Sen. Deb Fischer, R-NE, that declared May 29 Mental Health Awareness in Agriculture Day.

Farm advocates are also calling on Congress to increase funding for mental health resources for producers in the next Farm Bill, which is already 2.5 years behind schedule.

By Tony Leys for KFF Health News.
Broadcast version by Mark Moran for Iowa News Service reporting for the KFF Health News-Public News Service Collaboration

This town’s hospital is a holdout on behalf of people going through mental health crises. The facility’s leaders have pledged not to shutter their inpatient psychiatric unit, as dozens of other U.S. hospitals have.

Keeping that promise could soon get tougher if Congress slashes Medicaid funding. The joint federal-state health program covers an unusually large share of mental health patients, and hospital industry leaders say spending cuts could accelerate a decades-long wave of psychiatric unit closures.

At least eight other Iowa hospitals have stopped offering inpatient mental health care since 2007, forcing people in crisis to seek help in distant facilities. Spencer Hospital is one of the smallest in Iowa still offering the service.

CEO Brenda Tiefenthaler said 40% of her hospital’s psychiatric inpatients are covered by Medicaid, compared with about 12% of all inpatients. An additional 10% of the hospital’s psychiatric inpatients are uninsured. National experts say such disparities are common.

Tiefenthaler vows to keep her nonprofit hospital’s 14-bed psychiatric unit open, even though it loses $2 million per year. That’s a significant loss for an organization with an overall annual budget of about $120 million. But the people who use the psychiatric unit need medical care, “just like people who have chest pains,” Tiefenthaler said.

Medicaid covers health care for about 72 million Americans with low incomes or disabilities. Tiefenthaler predicts that if some of them are kicked off the program and left without insurance coverage, more people would delay treatment for mental health problems until their lives spin out of control.

“Then they’re going to enter through the emergency room when they’re in a crisis,” she said. “That’s not really a solution to what we have going on in our country.”

Republican congressional leaders have vowed to protect Medicaid for people who need it, but they also have called for billions of dollars in cuts to areas of the federal budget that include the program.

The U.S. already faces a deep shortage of inpatient mental health services, many of which were reduced or eliminated by private hospitals and public institutions, said Jennifer Snow, director of government relations and policy for the National Alliance on Mental Illness. At the same time, the number of people experiencing mental problems has climbed.

“I don’t even want to think about how much worse it could get,” she said.

The American Hospital Association estimates nearly 100 U.S. hospitals have shuttered their inpatient mental health services in the past decade.

Such closures are often attributed to mental health services being more likely to lose money than many other types of health care. “I’m not blaming the hospitals,” Snow said. “They need to keep their doors open.”

Medicaid generally pays hospitals lower rates for services than they receive from private insurance or from Medicare, the federal program that mostly covers people 65 or older. And Medicaid recipients are particularly likely to need mental health care. More than a third of nonelderly Medicaid enrollees have some sort of mental illness, according to a report from KFF, a nonprofit health policy organization that includes KFF Health News. Iowa has the highest rate of mental illness among nonelderly Medicaid recipients, at 51%.

As of February, just 20 of Iowa’s 116 community hospitals had inpatient psychiatric units, according to a state registry. Iowa also has four freestanding mental hospitals, including two run by the state.

Iowa, with 3.2 million residents, has a total of about 760 inpatient mental health beds that are staffed to care for patients, the state reports. The Treatment Advocacy Center, a national group seeking improved mental health care, says the “absolute minimum” of such beds would translate to about 960 for Iowa’s population, and the optimal number would be about 1,920.

Most of Iowa’s psychiatric beds are in metro areas, and it can take several days for a slot to come open. In the meantime, patients routinely wait in emergency departments.

Sheriff’s deputies often are assigned to transport patients to available facilities when treatment is court-ordered.

“It’s not uncommon for us to drive five or six hours,” said Clay County Sheriff Chris Raveling, whose northwestern Iowa county includes Spencer, a city of 11,000 people.

He said Spencer Hospital’s mental health unit often is too full to accept new patients and, like many such facilities, it declines to take patients who are violent or charged with crimes.

The result is that people are held in jail on minor charges stemming from their mental illnesses or addictions, the sheriff said. “They really shouldn’t be in jail,” he said. “Did they commit a crime? Yes. But I don’t think they did it on purpose.”

Raveling said authorities in many cases decide to hold people in jail so they don’t hurt themselves or others while awaiting treatment. He has seen the problems worsen in his 25 years in law enforcement.

Most people with mental health issues can be treated as outpatients, but many of those services also depend heavily on Medicaid and could be vulnerable to budget cuts.

Jon Ulven, a psychologist who practices in Moorhead, Minnesota, and neighboring Fargo, North Dakota, said he’s particularly worried about patients who develop psychosis, which often begins in the teenage years or early adulthood. If they’re started right away on medication and therapy, “we can have a dramatic influence on that person for the rest of their life,” he said. But if treatment is delayed, their symptoms often become harder to reverse.

Ulven, who helps oversee mental health services in his region for the multistate Sanford Health system, said he’s also concerned about people with other mental health challenges, including depression. He noted a study published in 2022 that showed suicide rates rose faster in states that declined to expand their Medicaid programs than in states that agreed to expand their programs to cover more low-income adults. If Medicaid rolls are reduced again, he said, more people would be uninsured and fewer services would be available. That could lead to more suicides.

Nationally, Medicaid covered nearly 41% of psychiatric inpatients cared for in 2024 by a sample of 680 hospitals, according to an analysis done for KFF Health News by the financial consulting company Strata. In contrast, just 13% of inpatients in those hospitals’ cancer programs and 9% of inpatients in their cardiac programs were covered by Medicaid.

If Medicaid participants have mental crises after losing their coverage, hospitals or clinics would have to treat many of them for little or no payment. “These are not wealthy people. They don’t have a lot of assets,” said Steve Wasson, Strata’s chief data and intelligence officer. Even though Medicaid pays hospitals relatively low rates, he said, “it’s better than nothing.”

Birthing units, which also have been plagued by closures, face similar challenges. In the Strata sample, 37% of those units’ patients were on Medicaid in 2024.

Spencer Hospital, which has a total of 63 inpatient beds, has maintained both its birthing unit and its psychiatric unit, and its leaders plan to keep them open. Amid a critical shortage of mental health professionals, it employs two psychiatric nurse practitioners and two psychiatrists, including one providing care via video from North Carolina.

Local resident David Jacobsen appreciates the hospital’s efforts to preserve services. His son Alex was assisted by the facility’s mental health professionals during years of struggles before he died by suicide in 2020.

David Jacobsen knows how reliant such services are on Medicaid, and he worries that more hospitals will curtail mental health offerings if national leaders cut the program. “They’re hurting the people who need help the most,” he said.

People on Medicaid aren’t the only ones affected when hospitals reduce services or close treatment units. Everyone in the community loses access to care.

Alex Jacobsen’s family saw how common the need is. “If we can learn anything from my Alex,” one of his sisters wrote in his obituary, “it’s that mental illness is real, it doesn’t discriminate, and it takes some of the best people down in its ugly swirling drain.”


Tony Leys wrote this story for KFF Health News.


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Maryland ranks better than many states for the quality of its maternal mental-health care - but it could be doing more.

Maryland receives a "C" grade on a report card by the Policy Center for Maternal Mental Health. The country as a whole gets a "C-minus."

Caitlin Murphy, a research scientist at the center, said screenings are necessary to diagnose and treat maternal mental-health issues. However, fewer than one in five women who are Medicaid enrollees - and only one in ten who have private insurance - are screened for these issues, during and after pregnancy.

"It's becoming increasingly well-known that the scope of maternal mental health need in the U.S. is massive," she said. "Right now, maternal mental-health disorders do impact one in five mothers in the U.S., and currently, maternal mental-health conditions are the leading cause of maternal mortality in the U.S., as well."

One step she recommended is that Maryland require Medicaid insurers to track rates of maternal mental-health screenings. The report said only 22% of women who screened positive for depression received mental-health treatment.

Maryland helps set the curve in a couple of areas, including the number of prescribers with specific training in maternal mental health. Murphy said the state also does particularly well in an area that's new in this year's report card - providing enhanced reimbursements for group prenatal care for expectant mothers.

"And that actually creates a peer support system and built-in social supports, so that moms are able to connect with one another, not only during their pregnancy but then also postpartum," she said. "And these programs have been shown to be really effective at supporting moms' mental health."

Nineteen states received a failing grade in the report, and only seven received a better grade than Maryland.


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