Providence Health and Services could close an at-home program enabling communication by people with diseases making it hard or impossible to speak.
The hospital system announced it would close the Home Health Augmentative and Alternative Communication-Speech Language Pathology program next month. People who are involved and have benefited from the service said it would be a devastating decision.
Kara Hayden, one of three speech language pathologists with the program, talked about the ramifications for people with diseases like ALS and certain types of autism.
"They won't be able to communicate with their family and friends," Hayden outlined. "They won't be able to participate in social engagements and interactions. They'll be more socially isolated, which we know: loneliness kills. They won't be able to participate and direct their own medical care. They won't be able to communicate with their doctors."
The speech pathologists are represented by the Oregon Nurses Association, which opposes the layoffs and said Providence is prioritizing profits over patients and employees. Providence said it is restructuring some of its programs to focus on core services. The hospital system also said it is reevaluating whether to close this program based on feedback from the community.
Lois Rosenbaum's husband Richard is a former Providence neurologist who has ALS. She said his only means of communication as been through this program's speech therapist, who has come to their home almost every week for the past year.
"It is a life-changing program for people with ALS who can't communicate any other way," Rosenbaum stressed. "It enables them to communicate in the only way they can, through a computer and through a system that is especially designed for people who can no longer speak."
Hayden added the program provides a unique service.
"We tailor their interventions to their home environment," Hayden explained. "To the people who are coming and going from their homes, to the physical environment to their homes and to their specific communication needs."
Disclosure: The Oregon Nurses Association AFT Local 5905 contributes to our fund for reporting on Civic Engagement, Health Issues, Livable Wages/Working Families, and Mental Health. If you would like to help support news in the public interest,
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A Pennsylvania nurse is sounding the alarm about proposed cuts to Medicaid funding now in Congress, cuts she said could jeopardize care for her son as well as millions of Americans.
The House version of the budget reconciliation bill would slash federal Medicaid spending by at least $700 billion to fund a tax-cut extension and other Trump administration priorities.
Jennifer K. Graham Partyka, a registered nurse in Northeast Pennsylvania, joined the "Fair Share for Americans" bus tour in Scranton this week. She said Medicaid is a lifeline for her 28-year-old son living with Crohn's disease.
"We were lucky, because when he was very sick, he qualified for Medicaid," Partyka recounted. "He was fully disabled until he started getting the treatments and started getting better. There's a version of that Medicaid called, like, 'Medicaid for working disabled people.'"
Medicaid covers about one in four Pennsylvanians, including 750,000 with disabilities. Partyka pointed out her son, who works full-time, would not be affected by the work requirements Congress wants to add for Medicaid eligibility. It would mean adults without children would need to work or volunteer 80 hours a month to keep their coverage. Republicans are pushing to pass the reconciliation bill by July 4 but debate could delay it.
Partyka emphasized Medicaid is one of the top five sources of payment to every hospital in the nation. With many already struggling to stay open and fully staffed, she thinks cutting Medicaid would also be disastrous for people's access to care.
"My professional experience with Medicaid is that most of the recipients of Medicaid are children," Partyka stressed. "I'm also going to share that 60% of people in nursing homes list Medicaid as their primary payer."
She added voters ultimately have the power to hold lawmakers accountable for the fallout from major budget decisions, noting many congressional seats will be up for grabs in 2026.
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Diabetes diagnoses are climbing, with about 37,000 adults diagnosed in Indiana every year, and doctors caution they are seeing more cases in younger patients.
Diabetes means the body is unable to maintain a healthy blood glucose or blood sugar level. Type 1 is caused by an autoimmune process affecting the pancreatic cells which make insulin. Type 2 diabetes means the body has reduced sensitivity to the insulin it naturally produces.
Dr. Tamara Hannon, pediatric endocrinologist at Indiana University's Riley Hospital for Children, explained why the body's response function changes.
"The pancreas can stop making enough insulin for a number of reasons," Hannon noted. "Could be genetic, the cells get damaged over time by having to work too hard, an infection, high blood fat levels, or just getting exhausted over time."
The Centers for Disease Control and Prevention predicts if the rate of new diagnoses in kids and teens continues to climb, Type 1 diabetes cases would increase by about 65 % and Type 2 by about 700% by the year 2060.
There is no cure for Type 1 diabetes but its progression can be delayed with medication. For the more common Type 2, cell damage can be delayed or even reversed through weight loss, exercise, lifestyle changes and medication.
Hannon pointed out with the epidemic of childhood obesity, younger people are developing diseases traditionally diagnosed in adults, in part because of their food and beverage choices and other environmental factors. She added research shows sugary drinks in particular increase the risk for not only Type 2 diabetes, but liver disease and cardiovascular disorders.
"If you think about when you drink sugar versus when you eat foods that contain sugar, there's a different way that is absorbed and metabolized," Hannon observed. "If you drink something that's sugary, the sugar goes into your bloodstream quite quickly."
Hannon stressed the body has to mount a quick metabolic response to a rapid sugar download but the natural sugars in whole foods, like fresh produce and certain vegetables, are not absorbed by the body as quickly. According to the American Diabetes Association, 12%, or about 666,000 Hoosiers, are diabetic.
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The Missouri Foundation for Health has named the first five winners of its new "Spark Prize," an award backing Missourians who are working to promote health equity.
Each winner gets $200,000 in no-strings-attached funding to fuel their vision. Awardees were chosen for their potential to create meaningful, lasting change in the Show-Me State.
Evonnia Woods, a community organizer and movement builder, was one recipient, chosen for her progress and vision to advance racial, reproductive and economic justice across Missouri. She shared why the award from the foundation is unique.
"A lot of foundations, they want to see evidence that you're already doing what you're asking for funds to continue doing," Woods explained. "In this regard, it's like, 'Oh, you believe in me. This is good because I believe in me.'"
Unlike traditional grants, the Spark Prize is flexible and trust-based, given directly to individuals and not organizations. The recipients were selected from more than 170 nominations from diverse backgrounds, regions and sectors across Missouri.
Ciearra "CJ" Walker, founder and CEO of the Community Health Worker Coalition, which has trained more than 300 community health workers in St. Louis and supported more than 600 statewide, was a recipient. Walker, a Detroit transplant, shared the motivation behind starting her organization and her vision for the future.
"What we are hoping to do is to replicate across the country what's possible when we position ourselves," Walker noted. "Not just to extract from our community leaders, but to truly allow them to be architects of the system that they participate in and benefit from them accordingly."
Walker added her coalition also reinvested $30,000 dollars into its members through pay, training and growth support.
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