PHOENIX - Caring 24-7 for a child with a life-threatening condition can drive a family to the brink. One of the nation's first respite-care facilities for kids opens two weeks hence in central Phoenix. The executive director of the Ryan House facility, Nancy Martin, says families will get a needed break, while children will experience a homelike atmosphere.

"It means stimulating them, making them comfortable, giving them an opportunity to have a good time and be a child, instead of what they've been used to, which is mostly doctors and hospitals."

Martin says Ryan House will operate under a philosophy that emphasizes comfort and pain relief. Rooms are designed with extra beds for parents who want to be with their children. There are also separate rooms where families can stay.

Martin says the unrelenting pressure of caring for a child with a life-threatening condition has driven some parents to desperate measures.

"When they reach the end of their rope, when they're exhausted to the point of being sick, they just put the child in the car and take him or her to the emergency room, and they get a couple of hours break."

Martin says if necessary, Ryan House can provide end-of-life care as well.

"If those children come to the end of life and their parents choose to have them at Ryan House for whatever period of time it is, they're welcome to do that and they will receive hospice care here."

Martin says Ryan House is entirely supported through grants and donations.


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A new report argued many charitable foundations need to examine the origin of their wealth and repair harms done.

The National Committee for Responsive Philanthropy used publicly available information to examine how historic business fortunes behind some foundations were made. Drawing on historic examples of businesses profiting from systemic racism and discrimination, the report titled "Cracks in the Foundation" stressed the need for philanthropic organizations to do their own research, connect with Black communities, and move charity dollars toward repairs.

Claire Dunning, assistant professor of Public Policy at the University of Maryland, served on the report's advisory committee and said foundations can seek partnerships including local history centers to help with the process.

"This doesn't have to be a private, or sort of closed-off process," Dunning contended. "It can be one rooted in transparency and inviting people in. And again, that can be uncomfortable. But I would argue that's not an excuse to not begin this important work."

The report presented case studies tracking the economic history of eight foundations in the Washington, D.C., area. The study's authors said they seek to make difficult conversations easier and are presenting the case studies as educational guides for an accountability and healing journey.

In looking at historic harms, the report focused on four sectors: media including anti-Black rhetoric; housing including discrimination, segregation and displacement; employment including stolen labor; and health care including mental and physical harm and neglect. The report assessed harm using both quantitative and qualitative methods. Dunning stressed in looking to the historical record to find evidence of past harm, researchers must take a broad view.

"We need to think about how newspaper accounts or advertisements for a particular neighborhood that talk about restrictive covenants. That's a form of evidence," Dunning pointed out. "We can think about oral histories of people who are displaced from certain neighborhoods or who were denied equal wages in an employment situation, that's a form of evidence."

The Federal government requires private foundations to use their assets to benefit society. Each year they must distribute at least 5% of the market value of their endowment to charitable purposes.


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A new report said philanthropic organizations need to reexamine the source of their wealth, which it asserted often came from systemic racism and discrimination, and stressed the need to repair the harm done to Black communities.

Called "Cracks in the Foundation," the report from the National Committee on Responsive Philanthropy examines at the histories of eight grantmakers.

Katherine Ponce, research manager of special projects for the committee, explained how the report was developed.

"There's four categories of harm we focus on," Ponce pointed out. "It's anti-Black media and rhetoric, housing discrimination and segregation, unemployment and hidden opportunity, and then health care, both mental and physical."

The report urged grantmakers to reckon with their past, connect with harmed communities, work to repair the damage, make sure any harm doesn't continue and advocate for funding for reparations. While the report focuses on the Washington, D.C., area, it mentions California's Task Force to Study and Develop Reparation Proposals for African Americans as an encouraging development.

Hanh Le, co-CEO of if: A Foundation for Radical Possibility, which commissioned the report and is one of the institutions examined, said her organization once believed the money to endow the foundation came from a health association jointly created by Black and Jewish workers when in fact, the agency initially excluded Black workers.

"Every foundation has an origin story that we believe ties the wealth that generated the endowment for those foundations to racialized capitalism, to structural racism," Le contended. "We all have an obligation to know that truth, to reckon with the truth and to repair the harm."

Debra Watkins, founder and executive director of San Jose-based ABEN, which stands for A Black Education Network, said to play a role in repair, grantmakers should invest in Black-led organizations, which still only get a fraction of the billions given annually.

"Foundations that have amassed their wealth as a result of harm done to Black people over decades, now have an obligation to fund Black-led work," Watkins urged. "And also to ameliorate conditions under which Black people still live."

On Giving Tuesday tomorrow, donating money isn't the only way to support the groups and causes you care about.

The global Giving Tuesday movement promotes "radical generosity," defined as "the concept that the suffering of others should be as intolerable to us as our own suffering."

Millions of people in the U.S. pledged a total of over $3 billion on Giving Tuesday last year - a 15% increase over 2021.

Philanthropy Ohio President and CEO Deborah Aubert Thomas said by occurring during the holiday season, Giving Tuesday lends itself to a particular type of giving.

"I think the timing of Giving Tuesday really gives the opportunity to focus on the things that we are all giving thanks for on Thanksgiving," said Thomas, "things that we know not everyone in our communities have access to - food and housing and just basic human securities."

Thomas said in 2020 - the most recent year for which IRS data is available - nearly 4,000 Ohio foundations donated $1.94 billion.

She explained that because fewer people itemize on their tax returns since the 2017 tax changes, it's hard to assess individual giving.

But prior to tax law changes, total giving by individual Ohioans was triple that of foundation giving. And the majority was by households with annual incomes of between $50,000 and $200,000.

She said children can learn about philanthrophy by sharing their "time, talent and treasures" at a young age.

"One of the best ways to do that is through community service and volunteering," said Thomas. "And through that learning about what the issues are in their communities, so that they can connect to what is sort of their passion and where they see they would like to make a difference, both with their time as well as through their giving."

Pointing out that philanthropy is defined as love of humankind and love of mankind, Thomas said it can start in your own neighborhood.

"Every community and even every neighborhood has unique needs," said Thomas. "And I think for folks to get off of their screens and learn about their neighbors and where there's need. I think philanthropy is - it's a state of mind as much as it is an activity."

The Giving Tuesday website reports that more than three-fourths of acts of generosity are non-monetary.

This story was produced in association with Media in the Public Interest and funded in part by the George Gund Foundation.




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