SEATTLE – Dos legislaciones aprobadas este año en el estado de Washington facilitarán a los padres el proceso de solicitud para convertirse en los cuidadores de sus hijos.

La Presidenta de SEIU 775, Sterling Harders, dice que su unión representa a miles de padres que cuidan de sus pequeños con discapacidades intelectuales y del desarrollo.

Por estos miembros supo que cuando sus pequeños cumplían 18 años, conseguir su tutoría exige un trámite caro y complejo, lo que a veces hace necesario recurrir a un abogado para comprender el proceso. Además hay diferencias de un condado a otro. Harders dice que dos piezas de legislación están abordando estos problemas, ayudándoles un poco a los padres con la carga.

“La vida es ya muy difícil para quienes tienen que cuidar a pequeños con necesidades especiales. No necesitan otra preocupación, así que esperamos que estas dos iniciativas les faciliten un poco la vida a los padres.”

La Ley del Senado 5604 de Custodia Uniforme (“Uniform Guardianship Act, Senate Bill 5604”) estandarizará el proceso de custodia en los 39 condados del estado y creará un sistema de monitoreo y un modelo de programa de capacitación. La iniciativa se encuentra en el escritorio del Gobernador Jay Inslee.

La otra medida, la “House Bill 1329”, crea alternativas para una custodia legal total. La iniciativa fue firmada en abril y entra en vigor al final de julio.

Shannon Beigert es madre de dos pequeños con necesidades muy diferentes. Es la guardiana legal de su hija, quien tiene una discapacidad intelectual. Y su hijo tiene autismo, que se manifiesta como una conducta retadora y opositora hacia ella y su esposo, lo que les ha llevado a recurrir a un cuidador externo para él.

Dice que las leyes que establecen patrones uniformes para todos no funcionan para personas tan diferentes como sus dos hijos.

“En el mundo actual, o eres una persona incapacitada o eres una que no está incapacitada con todos sus derechos legales, y crear una oportunidad para que haya opciones diferentes dentro de esa gama es, yo pienso, muy importante.”

Beigert agradece la capacidad de los legisladores del estado de Washington para ayudar a los más vulnerables.

La iniciativa SB 5604 puede ser consultada en: app.leg.wa.gov/billsummary?BillNumber=5604&Initiative=false&Year=2019; la HB 1329, en: app.leg.wa.gov/billsummary?BillNumber=1329&Year=2019&Initiative=false

Recent research shows approximately half of people who die by suicide had contact with a health care professional within the month prior to their death.

However, a recent study shows only 8% of hospitals are currently implementing all four recommended suicide prevention practices: safety planning, warm handoffs to outpatient care, patient follow-up and lethal means counseling.

Melissa Tolstyka, director of Behavioral Health Services for Trinity Health Ann Arbor, said a seamless transition from inpatient to outpatient care is critical. At Ann Arbor, she saw a 46% increase in compliance with comprehensive suicide risk assessments and patients discharged on the suicide care pathway now receive a safety plan, which she sees as progress.

"We continue to see a need for really robust programming," Tolstyka explained. "Not just within the behavioral health world, but in the medical world as well. Our organization really wanted to focus on bringing the behavioral health and the medical services together to enhance our safer suicide care practices for our patients."

The initiative is being piloted across various units at Trinity Hospitals in Ann Arbor and Grand Rapids including the emergency department, psychiatric medical and inpatient nursing units. If you or anyone you know is struggling or in crisis, help is available 24 hours a day, seven days a week, by calling or texting 988, the Suicide and Crisis Lifeline.

Casie Sultana, clinical nurse leader for Trinity Health Grand Rapids, prioritizes patient well-being, emphasizing support and improvement over solely managing risks within the facility.

"We want to be someplace that people feel welcome to come to who are dealing with suicide," Sultana emphasized. "You feel so alone. It's a very lonely journey and we want people to come seek help and feel welcomed when they do that."

Susan Burchardt, clinical services manager at Trinity Grand Rapids, advised other hospitals considering a similar program to learn from organizations already using it.

Support for this reporting was provided by The Pew Charitable Trusts.


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Access to reduced-price medication is a necessity for many rural Missourians with low income.

Rep. Cindy O'Laughlin, R-Shelbina, the Senate Floor Leader, said Big Pharma is trying to confuse legislators with unrelated hot-button topics such as abortion access and illegal immigration in a last-ditch effort to stop the state from joining a program to force drugmakers to sell medicines at a discount.

"Appealing to nuclear topics, which really do not apply in this situation, is a disingenuous way to try to defeat a bill that is actually good for Missouri," O'Laughlin asserted.

O'Laughlin pointed out the program is transparent, and uses the tax money saved to help low-income families deal with chronic conditions such as diabetes.

The drugmakers object to the government forcing them to give significant discounts, arguing hospitals' and for-profit pharmacies' bottom lines, particularly those owned by pharmacy benefits managers, are being exploited. Nationally, 46% of contract pharmacy agreements involve pharmacies linked to the three largest benefits managers.

Rep. Tara Peters, R-Rolla, introduced the 340B contract pharmacy access billand said the lobbying is absurd.

"Federally, 340B program does not allow for abortion drugs," Peters stressed. "Why would any legislation that we're trying to pass in the state allow for that? I mean, the thought of that even being in existence is absolutely ludicrous."

The Missouri Senate passed the bill 27-3 on Monday and it now goes to the House.


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Alabama is running out of time to tackle Medicaid expansion this legislative session.

More than 230 people gathered earlier this month with the group Alabama Arise, urging state lawmakers to prioritize the issue. Their message: Access to health care isn't just a matter of policy, it can be a matter of life and death.

Debbie Smith, Cover Alabama campaign director for Alabama Arise, said as the session winds down, the group will continue to echo the call for increased access to health coverage. She thinks it would not only save lives but revitalize communities across the state.

"Over 80% of our rural hospitals are operating in the red," Smith pointed out. "Not a great stat. About 19 rural hospitals are at immediate risk of closure, and those are the lifeblood of those communities. They're on life support."

Smith emphasized hospitals at financial risk also put their workforce at risk. Those who are against Medicaid expansion believe it is ultimately unaffordable for the state. However, Smith argued it could save the state nearly $400 million over the next six years. According to the Public Affairs Research Council of Alabama, those savings would be enough to cover the cost.

The council's study also showed Medicaid expansion would generate nearly $2 billion of economic growth. Beyond economic benefits, Smith pointed to the stark disparities in maternal and infant mortality rates in Alabama.

She stressed Medicaid expansion would do more than provide health care coverage during pregnancy or postpartum, it is about ensuring comprehensive coverage.

"We've been lucky enough to expand Medicaid coverage up to 12 months postpartum but we still need to figure out how to cover people before they even get pregnant," Smith asserted. "It's really important for people to have health coverage so they can address any kind of issues they might have, like if they have diabetes or high blood pressure that might affect their pregnancy in the future."

With limited time left in the legislative session, she noted one option could be Gov. Kay Ivey's executive authority to enact Medicaid expansion. Smith added using the power could be the simplest path forward, backed by the promise of additional funding from the American Rescue Plan.