The National Institutes of Health has begun a nationwide research project to better understand how to prevent and treat what's become known as "long" COVID, as well as determine who's at risk.
The COVID-19 virus has affected millions of Americans, but most people recover from the illness - at least initially.
But doctors say thousands of people who thought they were done with the virus develop "long" COVID, weeks and even months after the initial symptoms are gone.
"Long-haulers," as they're called, often experience heart and lung problems, severe fatigue and cognitive issues such as "brain fog," according to NIH neurologist Dr. Walter Koroshetz - a co-director of the study.
Koroshetz, who is also the director of the National Institute of Neurological Disorders and Stroke, said they are looking for volunteers to participate.
"Some of the doctors are seeing people who are two years out and still having trouble," said Koroshetz. "That's the big worry, that it may turn into a chronic illness for some people if we don't figure it out quick enough to be able to find a treatment."
Koroshetz said the study is seeking volunteers of all ages and ethnicities from Arizona and elsewhere. They are looking for people who have - and have not - had COVID-19, including those who are pregnant.
He said they particularly need volunteers from rural areas.
To sign up, go online at 'RecoverCOVID.org.'
He said the RECOVER Initiative's primary goal is to understand how people recover from COVID and determine why some of them develop long-haul symptoms and others don't.
"We'd like to get a group of people that are representative from around the country," said Koroshetz. "So, in your area - University of Arizona in Tucson, Banner Health in Tucson, University of Utah in Salt Lake City are all enrolling. We have hundreds of sites around the country."
Koroshetz said the study needs a wide variety of volunteers to share their experiences.
"The real heroes are the subjects who enroll in this study," said Koroshetz. "The people who are having trouble enroll, I think, because they want to understand what's wrong with them and they want to contribute to the knowledge. We also need people who do it for purely altruistic reasons, the people who are not having trouble."
He added that volunteers can expect a phone call from a study representative to gather basic demographic information, ask about their experience with COVID-19 and to find out why they want to be part of the study.
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California is poised to become the first state in the nation to give health care to all income-eligible residents, regardless of their immigration status.
The Legislature is set to pass the final budget bills this week, which will be signed by Gov. Gavin Newsom shortly thereafter.
Cynthia Buiza, executive director of the California Immigrant Policy Center, said it is the fulfillment of an almost decadelong push by the Health4All campaign.
"This is very timely, but also long overdue," Buiza asserted. "Because for many, many years, many of our immigrant workers who have contributed tremendously to what makes California, California, have gone on without this very important safety net."
The budget deal represents a huge step toward universal health coverage and is expected to benefit about 700,000 people, starting in 2024. Opponents cite the cost: The budget includes $625 million to cover the first six months of 2024, and then allocates $2.1 billion per year.
Beatriz Hernandez, Central Valley organizer for the California Immigrant Policy Center, said it will make a huge difference in people's quality of life.
"This means that they will finally be able to get the health care that they need to care for the chronic illnesses that they've been suffering for many years," Hernandez pointed out. "And also be able to get the checkups that they need."
The deal marks the final push to expand Medi-Cal to all low-income Californians. In 2015, the state expanded Medi-Cal to include undocumented children. In 2020 the program grew to include young adults, up to 26 years old. And this year the program began to accept undocumented adults, age 50 and older.
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The ruling on abortion by the U.S. Supreme Court has returned the issue to the states, fulfilling long-held goals of Republican lawmakers in Texas to ban and criminalize abortion.
With the 49-year-old Row v. Wade case overturned, a trigger law takes effect next month, banning abortions from the moment of fertilization - there is no exception for rape or incest.
Texas lawmakers were ahead of the high court, passing legislation last fall to prohibit abortions after six weeks. Aimee Arrambide, executive director of the Texas chapter of the abortion rights group Avow, said she expects half the states to follow Texas' lead.
"We've been ringing the alarm that what is happening in Texas, doesn't stay in Texas," said Arrambide. "And that the public health crisis Texans have been facing for nearly 10 months will be the reality in half the country. Our opponents are not going to stop until abortion is completely inaccessible in the country."
In his concurring opinion with the 6-3 vote, Supreme Court Justice Clarence Thomas said high court rulings that established a right to contraception, as well as gay rights should also be reconsidered.
Following the ruling, Texas GOP Gov. Greg Abbott said abolishing Roe v. Wade, "reinstated the right of states to protect innocent, unborn children."
New Mexico is now the closest state for many Texans seeking an abortion, but getting there may not be possible for low-income people who don't have the time, money or child care to travel out of state. Progress Texas Advocacy Director Diana Gomez said education is the next step.
"There are a lot of folks who don't know about the existence of abortion funds," said Gomez, "of infrastructures that are already in place to help people get abortions, and so we want to let people know about clinics in surrounding states."
In addition to Texas, 25 other states are expected to make abortion illegal, affecting the lives of 36 million people. University of Texas at Austin Associate Professor Kari White said entire regions of the country may soon be in the business of extreme criminalization.
"In a state like Texas," said White, "it's also going to criminalize a whole range of behaviors and practices for people who are trying to help someone get an abortion."
Prior to the court's ruling, a poll by Reuters showed about 71% of Americans - including majorities of Democrats and Republicans - believed pregnancy termination should be a patient-doctor decision.
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Medical negligence cases in Washington and elsewhere have taken on a new shape during the pandemic, as hospital resources have been strained and the potential usefulness of certain treatments has ebbed and flowed.
Drugs like ivermectin, for instance, were touted online as a potential COVID-19 treatment but ultimately lacked scientific evidence to back up those claims.
Elizabeth Calora is a Tacoma lawyer who specializes in medical negligence cases. She said there are some legal requirements for determining if a health professional acted carelessly which have been affected by COVID.
"We need to figure out what a reasonably prudent provider should have been doing in that context," said Calora, "and it usually means talking to experts in the field and then determining if what the provider did in the moment or over the course of several visits violated that standard of care."
Calora said after that, the person has to prove that the breach is what caused the damages.
The Washington state Legislature modified evaluations of negligence cases in 2021 so that resources and staffing must be taken into account. For instance, hospitals have often lacked beds at the height of different COVID waves, a factor outside of doctors' or facilities' control.
Calora said the standard of care evolves over time. What was once an acceptable medical practice in the 1970s, for example, might not be anymore.
"But usually it happens in a much slower timeframe than what we experienced at the start of the pandemic," said Calora. "With COVID, you had physicians all over the world basically - it makes me think of throwing spaghetti on the wall to see what sticks. Everyone was trying everything they could."
Calora said the unforeseen nature of the pandemic has made it hard to bring medical negligence cases forward. However, she added that shouldn't discourage people from speaking with an attorney if they feel they or a loved one has been wronged.
"Even though things were bad," said Calora, "it doesn't give people license to practice beneath the standard of care."
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