Saturday, November 26, 2022

Play

An investigative probe into how rules written for distressed rust belt property may benefit a select few; Small Business Saturday highlights local Economies; FL nonprofit helps offset the high cost of insulin.

Play

A Supreme Court case could have broad implications for the future of U.S. elections, results show voters rejected election deniers in many statewide races, and the concession phone call may be a thing of the past.

Play

A water war in Southwest Utah has ranchers and Native tribes concerned, federal solar subsidies could help communities transition to renewable energy, and Starbucks workers attempt to unionize.

Sickle Cell Awareness Month Aims to Inform, Educate about Genetic Disease

Play

Friday, September 9, 2022   

September is Sickle Cell Awareness Month, a time when doctors and patient advocates hope to spread awareness of a complex and often misunderstood medical condition.

Sickle cell anemia is a genetic disorder that causes red blood cells to have a sickle or crescent shape, leaving patients in a chronic state of anemia. Regular blood transfusions are a key treatment for the condition.

Dr. Maa-Ohui Quarmyne, a pediatric hematologist at Phoenix Children's Hospital, said despite a commonly held belief, the condition is not limited to Black people.

"Sickle cell disease has generally been associated with people of African descent or African Americans," she said, "but it's also found in Asian, European descent, Indian descent, and even people from the Mediterranean."

Quarmyne said the genetic condition is present at birth and is inherited through a gene from both parents. According to the Centers for Disease Control and Prevention, it affects as many as 100,000 people across the United States and occurs in one out of every 365 African Americans.

Sickle cell disease is considered to be both persistent and insidious. If it goes untreated, Quarmyne said, it can bring debilitating complications and even death at an early age.

"It affects almost every organ in the body," she said, "and it can be quite an unrelenting disease, so that even patients who on the outside look well can have ongoing organ damage."

Quarmyne said blood transfusions are crucial to relieving the symptoms of sickle cell, and there is an urgent need for blood donors, from a wide variety of races and ethnicities.

"It is ideal to have diversity in the donor pool, especially when you have sickle cell populations," she said, "because a lot of patients tend to be minority patients."

She said new drugs and bio-technologies - including gene therapy and genetically modified stem cells - are bringing better outcomes, but researchers have yet to find a cure.

To donate blood, contact your local blood bank or go online to AmericasBlood.org.


get more stories like this via email
Nearly 1,000 Small Business Development Centers operate nationwide. (Adobe Stock)

Social Issues

Holiday shoppers this week have no shortage of options with Small Business Saturday being observed on Nov. 26. Sandwiched between Black Friday and …


Social Issues

By Lucia Walinchus for Eye on Ohio.Broadcast version by Nadia Ramlagan for Ohio News Connection Collaboration reporting for the Ohio Center for Invest…

Social Issues

While many Iowa families gather through this weekend to celebrate Thanksgiving in traditional ways with food and family, thousands of people take to …


The EPA claims that the EES Coke Battery plant has emitted thousands of tons of sulfur dioxide annually beyond its permitted limit of 2,100 tons. (Wikipedia)

Environment

Members of a Detroit-area community are intervening in an Environmental Protection Agency lawsuit against a DTE Energy subsidiary charged with dumping…

Health and Wellness

A bill headed to President Joe Biden's desk addresses a long-standing problem for domestic violence survivors, ending their ties to their abusers' …

The River Democracy Act would double the number of river miles currently protected as Wild and Scenic. (Jeffrey Schwartz/Adobe Stock)

Environment

Oregon is home to a plethora of rivers, but those waterways are not always accessible to every community. A new video series highlights how …

Environment

California is number one in the country for dollars spent on camping, hiking, climbing, and biking, according to the latest federal data. The most …

Social Issues

As holiday shopping kicks into high gear, security experts are offering tips for avoiding efforts by scammers to separate people from their hard-…

 

Phone: 303.448.9105 Toll Free: 888.891.9416 Fax: 208.247.1830 Your trusted member- and audience-supported news source since 1996 Copyright 2021