With the election a little over a month away, some say caregiving and long-term care are issues too big for candidates in Oregon to ignore.

There are about 460,000 family caregivers in the state providing $5.7 billion of unpaid care, according to a 2017 estimate.

Yvonne Smith, a faculty member at Clackamas Community College, said some people may not even realize they are caregivers.

"For example, if you are helping someone manage their medications, if you're doing someone's grocery shopping, if you're checking in on them and helping them go through their mail," Smith outlined. "Those are all caregiving activities."

Smith pointed out despite the numbers, Oregon is in need of more caregivers, especially with the avalanche of Baby Boomers retiring in the coming years. She added people need more resources.

"We don't have enough," Smith contended. "In fact, we don't have almost any programs to support in-home caregivers."

Smith explained Oregon has applied for a Medicaid waiver to ensure family caregivers can get breaks through respite care. She also noted professional caregiving from people who are not family members or friends is low-paying, although it is beginning to change with recent unionization efforts in the industry.

Fred Steele, Oregon's long-term care ombudsman, agreed the state is in need of more workers.

"There is a significant workforce shortage across the state for caregiving," Steele observed. "Whether it be in in-home settings, but particularly in our long-term care settings."

Steele emphasized the issues caregivers face, especially in long-term facilities, have garnered more attention since the pandemic began. He stressed it is most important to ensure workers have the training, wages and benefits they need to do their job successfully and support themselves.

November is National Family Caregivers Month, and many of the 200,000 Nebraskans who help care for loved ones with a health issue or disability could use help.

Caregiving can take its toll. In one survey, almost three-fourths of caregivers said they were emotionally stressed, and over half reported financial strain.

Mike Osberg is coordinator of the Caregiver Support Program at the Eastern Nebraska Office on Aging, which provides respite, or relief, for caregivers. He said the person being cared for must be age 60 or older, unless they have a diagnosis of early dementia. And they must require help with at least two activities of daily living.

"That includes things like being able to take a bath or shower by themselves, dressing themselves, being able to manually feed themselves," Osberg outlined. "Then, do they have problems with walking and using the bathroom?"

Osberg pointed out the caregiver is actually the client and must be at least 18 years old. They can receive up to six hours a week of relief from an in-home respite provider, or they can have their loved one attend an adult day program for five full days per month.

The Eastern Nebraska Office on Aging serves Cass, Dodge, Douglas, Sarpy and Washington counties. Each of Nebraska's eight Area Agencies on Aging provide support for caregivers, although the services may vary.

Each month, they send the caregiver a "contribution request" to cover a suggested percentage of respite expenses. Osberg noted the amount is based on the care receiver's monthly income, or a couple's combined income, if the spouse is the caregiver.

"A lot of folks, their income is low, so we may only ask for them to consider 10% of what the total cost was for the month -- or 20%, or 30% or on up -- but it's strictly voluntary," Osberg emphasized.

He added no one is denied services based on income or inability to pay.

Those who choose an in-home respite provider can schedule how they use the six hours per week, and Osberg stressed the adult day program can benefit the care receiver as well as the caregiver.

"The caregiver gets a bigger chunk of time," Osberg observed. "But also, the care receiver gets to participate in activities, is going to probably eat their noon lunch and snacks there, participate maybe even in a little road trip, things like that."

He said the participating caregiving agencies are all bonded and insured, and conduct background checks on their employees.


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Idaho officials are holding an event in the capitol to recognize family caregivers during National Family Caregiver Month. Lieutenant Governor Scott Bedke is reading a proclamation signed by Governor Brad Little in the Capitol Rotunda today.

Francoise Cleveland, associate state director of advocacy, AARP Idaho, said family caregivers often don't recognize the vital role they play.

"They sacrifice their time, their health and their financial stability to provide that care and support, and often this is a labor of love," Cleveland said.

Cleveland added that family caregivers are crucial for ensuring people stay in their homes as they age, which is the option many prefer. There are about 210,000 caregivers in Idaho, according to data from AARP.

Deneice Anderson, a family caregiver in Idaho taking care of her 82 year old mother, said it can be difficult to balance the assistance her mom needs with her own needs.

"She had a gal hit her car one day and so I'm the one that's doing the insurance work for that. And I take her to her appointments - and I work full time," she explained.

Cleveland says AARP Idaho has legislative priorities for the 2024 session that could help improve caregivers' lives.

"We will be working on addressing the shortage of direct care workers in Idaho, protecting vulnerable adults from financial exploitation, ensuring health care is available through Medicaid and working to update the guardianship and conservatorship statutes," Anderson said.

The 2024 legislative session is scheduled to begin on January 8th.

November is National Family Caregivers Month and a few tips can help people with these duties.

Executive Director of the Oregon organization Aging Concerns, Vicki Schmall, said family caregivers often are called the backbone of long-term care.

But she said people performing these roles must remember to think about themselves as well.

"I often say to family caregivers," said Schmall, "taking care of yourself is really the best gift you can give to the person who needs your care."

Schmall said its critical that they be willing to ask for and accept help. She said there are local supports available for caregivers through programs such as Oregon Care Partners and the state's Aging and Disability Resource Connection.

Schmall said people also should do their research early about potential facilities in the event in-home care becomes too much. She pointed to the service Eldercare Locator as a helpful resource in this search.

"What is most important about decision making," said Schmall, "is making decisions based on what is best and not on promises I made earlier or feelings of guilt, and also not on pressures from others."

Schmall emphasized that caregivers need to pay attention to how they're doing.

"If as a caregiver you find yourself becoming socially isolated, it's a warning sign," said Schmall. "It says the importance of making some change because social isolation is not good for either the family caregiver or the person receiving care."