November is National Family Caregivers Month, which focuses attention on the unpaid care work of family members.

The care provided by families often is enabled and supported by state-funded wrap-around services.

Over the last few decades, Missouri and other state governments around the nation have funded Home and Community Based Services - or HCBS - as a cheaper alternative to nursing-home care.

The turn towards HCBSs has meant that aging Americans are more often able to stay in their homes.

The kind of support they provide is broad, and includes visiting and live-in nursing care, in addition to other services such as transportation, home repair, and remodeling to ensure accessibility.

Recent state budget cuts to these programs threaten the availability of in-home care. Jay Hardenbrook, advocacy director with AARP Missouri, said funding HCBS sufficiently benefits all involved.

"It winds up saving the state a lot of money," said Hardenbrook. "It makes families stronger, especially if it's an unpaid family caregiver who's doing that, and it keeps that person receiving the services in the place that they want to be."

Hardenbrook said in Missouri alone, unpaid family caregivers are providing more than $8 billion worth of care. He called them an essential part of the system that doesn't get enough attention.

Funding for HCBSs in the state has declined over the last decade, with the nonprofit Missouri Budget Project reporting a 40% cut in community-based programs in 2018.

Last year the General Assembly injected $200 million from the American Rescue Plan into the system as a one-time payment to support care workers' wages.

Hardenbrook said the state needs to fully fund these programs.

"The state decides how much money goes into these programs," said Hardenbrook. "And if we let them stagnate for a long time as we did until last year, then fewer and fewer people will provide those services. Now that we've done this increase, if we can just keep it up, really we'll have a larger workforce and we'll have more people who are able to stay in their homes because they're able to get the services they need."

Hardenbrook said when aging seniors can't get the care services or home repairs they need, the state often ends up paying more for them to live in a nursing home.

He said while some people utilizing HCBS programs are doing so daily, others may only need occasional help.

"One of the things that has been very helpful, especially among our dementia enrollees, is that a family caregiver can get a day off," said Hardenbrook. "One day of respite is what we call it. But really, 'Can I just have a day where I don't have to be a caregiver all day long?' "

The Missouri Budget Project reports that on average HCBS support costs less than one third of institutional care.

Pennsylvania voters aged 50 and older are expected to play a pivotal role in the upcoming election, motivated by key issues, and could affect the results.

At a recent AARP Pennsylvania Women's Roundtable, suburban women 50 and older discussed top concerns, with an AARP poll revealing 60% felt the country is on the wrong track.

Betty from Chester County agreed and said coming out of the pandemic, inflation rose 8%, affecting families and the economy.

"Those prices that are out there, coming down very slowly or perhaps they're not increasing as much because the inflation is higher," Betty observed. "That is the difficult part to understand for families that have to buy groceries. Groceries are 25% more."

The AARP poll showed 94% of women are more likely to vote for a candidate who supports making sure workers get the Social Security they paid into and earned through a lifetime of hard work.

The poll found the biggest cost concerns to voters 50+ in Pennsylvania are food, utilities, health care and prescription drug costs.

Colleen from Bucks County said health care costs in Pennsylvania look promising and are headed in the right direction.

"One of the things that I'm seeing are some reductions in our health care costs, especially through Medicare, and with the opportunities to see that across the board," Colleen pointed out. "But for now, through Medicare, we're seeing that, and that's going well."

Elizabeth of Mount Lebanon in Allegheny County said leaders do not seem to be listening to communities' concerns. She added a big part of the issue also stems from the misinformation and disinformation spread by candidates, leaving people uncertain about who truly represents their perspective and interests in daily life.

"I am of Puerto Rican heritage, and I find that not only in Pittsburgh but even in Pennsylvania, during the elections, everyone's out looking for Latino votes," Elizabeth explained. "I don't think that the Latino population as a whole is listened to, except for to say negative things about immigrants."

Charlotte is also from Mount Lebanon. She recommended policymakers be more aware of the resources for grandparents who are caregivers of their grandchildren because of the opioid crisis. She added she has been taking care of her grandson for quite some time. In Pennsylvania alone, more than 235,000 grandparents are raising grandchildren.

"The opioid crisis has left a generation of children who have great needs," Charlotte emphasized. "There was settlement money provided to Pennsylvania, and I did look into that, but of the $73 million of the opioid settlement money, none of it was earmarked for these families."

The poll found 71% of women 50+ and 70% of suburban women are more likely to vote for a candidate who would help provide a tax credit for unpaid family caregivers who work to help cover the costs associated with caring for a family member.


get more stories like this via email

October is Long-Term Care Planning Month, and a few tips can help people when talking with their loved ones about this topic. Conversations about long-term care can be difficult.

Bandana Shrestha, AARP Oregon state director, said approaching the topic with compassion and care is key and noted that the 470,000 family caregivers in Oregon provide most of the care for close friends and family members, and need to be part of planning conversations.

"Making sure that you're talking early is really important, and also making sure you are involving all parties who may responsible for supporting somebody is really important," Shrestha said.

The population of people over age 65 is increasing rapidly in the U.S. and most will need long-term care supports of some kind, underscoring the need to begin planning for how that care will look.

Open enrollment for Medicare began this week and lasts through December 7th. But Shrestha noted the insurance program doesn't cover long-term care.

"There are certain provisions within Medicare where you can get some supports for being able to have short stays in long-term care facilities," Shrestha continued. "But otherwise, Medicare is really about your health care. It's your health insurance."

Oregon performed well on AARP's recent Long-Term Services and Supports Scorecard, ranking number seven in the nation. Although the state could do better in areas such as affordability, Shrestha says the state ranks high in terms of support for family caregivers.

"The reasons for that are policies like our recent paid leave law, which really is designed to help ensure that people have supports and can take time off when they need to care for themselves or for their loved ones," Shrestha said.

Medicare's open enrollment period starts tomorrow and runs through Dec. 7.

AARP Nebraska is encouraging Medicare recipients to review their supplements and Part D prescription drug plans. The good news for 2025 is the implementation of a $2,000 out-of-pocket cap for those on a Medicare prescription drug plan, which takes effect Jan. 1. It's one of several prescription cost-savings measures in the Inflation Reduction Act.

Todd Stubbendieck, state director of AARP Nebraska, said the cap should benefit a lot of Nebraskans.

"AARP fought to include this provision in a 2022 prescription drug bill that Congress passed," Stubbendieck pointed out. "About 15,500 Nebraskans will directly benefit, which means those people are currently paying more than $2,000 a year for their prescription drug coverage."

The Biden-Harris Administration estimated the cumulative out-of-pocket savings for Medicare Part D enrollees in 2025 will be more than $7 billion.

Stubbendieck reminded Nebraska seniors there can be considerable cost and coverage differences between plans, so it is important to review them during open enrollment. Nebraska's State Health Insurance Assistance Program and Volunteers Assisting Seniors can help, as can the online Medicare Plan Finder.

Stubbendieck stressed Medicare prescription plans can change from one year to the next.

"It's always important that you don't just assume what worked for you last year will work for you this year," Stubbendieck advised. "This is that moment of open enrollment where people should take that time. There are resources to help you go out there and review that plan to make sure you are getting the most cost-effective coverage."

In 2021, Volunteers Assisting Seniors helped 6,500 Nebraskans save a total of $1.2 million in Medicare costs.

Stubbendieck pointed to other money-saving provisions AARP helped secure in the 2022 Inflation Reduction Act Medicare prescription drug law.

"For the first time in our nation's history, Medicare is allowed to negotiate prescription drug prices," Stubbendieck emphasized. "The other thing that this bill did is it capped insulin prices for those on Medicare at $35 a month and a whole range of vaccinations are now free for folks who are on Medicare."

Some Nebraska seniors on expensive cancer, osteoporosis, pneumonia and Alzheimer's medications will also see lower co-payment costs from now to the end of the year because of another provision in the Inflation Reduction Act, the Medicare Prescription Drug Inflation Rebate program. And when the lower prices negotiated for the first 10 commonly used medications go into effect on Jan. 1, 2026, seniors nationwide are expected to save a cumulative $1.5 billion.