As Americans make end-of-year donations to their favorite causes, those that help children with cancer and their families say these households need support in difficult situations. A Minnesota-based group says inflation underscores the need.
The Pinky Swear Foundation has grown into a national philanthropic organization that will soon celebrate its 20th anniversary. The group's marketing manager, Jake Leif, said it's important that people also support cancer research and medical-debt initiatives, but groups such as his fill in the gaps in areas that might not receive as much attention when a family goes through this type of journey.
"When the child has cancer, life carries on," he said, "and so [there's] a lot of gas and grocery bills, rent, mortgages, car payments."
Leif said it makes it harder when a parent has to pause working, and the total cost of a child's cancer journey can exceed $800,000. He added that inflation has affected everyone's wallets this year, and these families are no exception. Support from the foundation, including individual donations, is designed to remove the pressure of those daily expenses.
While platforms such as GoFundMe are another good tool, Leif said they can only do so much when a situation quickly overwhelms a family's finances.
"We hear from families all the time that they had a beautiful nest egg, they had a healthy, healthy savings account," he said, "and childhood cancer came through and just blew it down."
The organization also will observe national Pinky Swear Day on Sunday. That proclamation originated from action in 2014 by then-Minnesota Gov. Mark Dayton. It reflects how the group was inspired when a 9-year-old boy named Mitch, who was diagnosed with cancer, gave his savings to families on the pediatric oncology floor where he was receiving treatment. Before his death, he asked his father to promise to carry out this mission moving forward.
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The holiday season is here and households in North Dakota and elsewhere might encounter sensitive conversations about lending money to a loved one in need.
There is emerging research about removing stigma and embracing mutual financial support. Higher housing costs, student loan debt and other factors have forced more generations of U.S. families to live under the same roof.
Jeffrey Anvari-Clark, assistant professor of social work at the University of North Dakota, said there is still a narrative about "rugged individualism" and it can be taboo to ask for help in covering expenses. He argued families need to feel comfortable in having these talks.
"There is a balance, I think, between having good independence and taking care of yourself," Anvari-Clark pointed out. "But there does also come a time when you need to receive help from others. "
Anvari-Clark has led research on the topic of "financial interdependence", noting it looks different for each family, as well as many cultures around the world. In America, he thinks financial literacy should stress the importance of saving money to help others in your life and not just building your own nest egg. He acknowledged the need to set clear boundaries because too much support can strain these relationships.
Anvari-Clark emphasized another hurdle to overcome is not letting the person asking the help to carry a lot of shame for past financial mistakes. He sees it as a learning opportunity.
"I'm taking this sense of regret and I'm doing something positive with it to improve my chances moving forward," Anvari-Clark explained.
GoFundMe campaigns are a popular way for people to raise money for someone in a bind. But Anvari-Clark added it does not just have to be a financial donation. At the community level, he sees households buying groceries in bulk to save money or getting creative with child care needs, as ways to embrace this mindset of mutual assistance.
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An event in Phoenix today will celebrate and highlight the power of collective giving in the Grand Canyon State.
Ilyasah N. Shabazz, senior operations and communications director for the organization Philanthropy Together, said Arizona is among the states with some of the most diverse set of "giving circles" advocating for a wide range of issues that affect local communities.
These groups bring together folks with shared values to decide where they should invest a gift, which Shabazz added isn't always financial.
"It is also about using our voice," said Shabazz, "so when you see that there are people advocating, they're using their voice, they're giving their time and volunteering their talent."
Shabazz called collective giving a "movement" in Arizona.
Circle Up Arizona's free event will take place from 5:30 to 7:30 p.m. at the Anchor Centre Building Courtyard.
The event is open to all current giving circle members, collective giving networks, and anyone looking to learn more.
Shabazz said groups in Arizona are coming together around a range of issues - ranging from affordable housing, to helping protect and preserve and responsibly manage Arizona's natural resources, to supporting initiatives and giving circles that are led by leaders that are from communities of color.
She added that giving circles not only help communities, but members themselves.
"That could mean with their professional pursuits, but also a lot of giving circles who are finding belonging by being part of these groups," said Shabazz, "and when you think about the trends in loneliness and isolation, those feelings that individuals are having, a lot of people are happy to join these groups and find community."
Research shows three-fourths of those who participate in collective giving report an increased belief in their social influence and feeling that their voices matter on social issues.
Shabazz added that women have also been an influential force within the movement, with 84% of giving groups reporting more than half of their membership is female.
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CORRECTION: An earlier version of this article incorrectly stated that Century 21 had raised more than $30 million. The correct amount is more than $3 million. (5:48 p.m. MDT, July 24, 2024)
More than 60 million Americans identify as disabled and many of them turn to nonprofit agencies such as Easterseals for therapy and other assistance.
The organization that became Easterseals was founded more than 100 years ago and has become the largest nonprofit health care agency in the country.
Kendra Davenport, president and CEO of Easterseals, said seeing to the health and wellness of more than 1.5 million people with disabilities is only possible with its team of national corporate sponsors, who collectively raise millions of dollars each year.
"It's critical because, unlike a for-profit, nonprofits have to raise their budget, whether they're raising it through government grants, foundation grants or corporate funding," Davenport pointed out. "And then, of course, there's the funding that comes in through individual donations. That's what sustains nonprofits."
As an example, Davenport cited Century 21 as a partner, raising more than $3 million in 2023 and $138 million during the life of its affiliation.
Easterseals has more than a dozen other corporate partners, including companies like Comcast-NBCUniversal, Coca-Cola and Delta Air Lines.
Davenport explained Easterseals got its name in 1934 from the practice of having donors put a stamp or seal on their donation envelopes. She noted the organization and its dozens of local affiliates work to enhance quality of life and expand local access to health care, education, and employment opportunities for children and adults.
"We provide essential services and on-the-ground support to millions of individuals and their families every year, from early childhood to the critical first five years," Davenport emphasized. "These include autism services, transportation, medical rehab and employment programs that target and assist veterans and senior citizens."
She added it is an ongoing challenge to extend the Easterseals brand because, despite more than a century of service, very few people understand the scope of what the organization does.
"Sixty-one million Americans identify as being disabled," Davenport reported. "That's a quarter of the American population. More people need to understand just how many people are disabled so that we can ensure that our world becomes more inclusive, more equitable and more accessible."
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