Los defensores de los derechos de los discapacitados de Nueva York están pidiendo que se aumente o elimine el límite de edad del programa estatal Medicaid Buy In.

El programa está diseñado para las personas con discapacidad que trabajan y ganan más de lo que les permitiría tener derecho al Medicaid ordinario. De este modo se garantiza que las personas con discapacidad no corran el riesgo de perder una cobertura médica vital, mientras siguen obteniendo algunos ingresos.

El límite de edad de 65 años podría hacer que las personas pierdan la cobertura que necesitan para prepararse día a día.

Heidi Siegfried, del Centro para la Independencia de los Discapacitados de Nueva York, describe los problemas a los que pueden enfrentarse las personas que alcanzan el límite de edad del programa.

"Si no pueden recibir atención en casa," dice Siegfried, "si necesitas atención domiciliaria para que te ayuden a pasar de la cama a la silla de ruedas o para que te ayuden a ducharte o a vestirte, ni siquiera podrías prepararte para ir a trabajar. Llegarías a los 65 anos y no tendrías acceso a la atención a domicilio, y probablemente tendrías que dejar tu trabajo."

Afirma que las personas tendrían que dejar de trabajar para poder acceder a los servicios de Medicaid que les garanticen el acceso a la atención domiciliaria.

En el presupuesto de Nueva York para 2024, la gobernadora Kathy Hochul destina 60 millones de dólares, a partir de 2025, a ampliar el programa para que más personas con discapacidad puedan trabajar y seguir teniendo derecho a cobertura.

Una de las preocupaciones de la gente es que, cuando la pandemia de Covid-19 llegue a su fin, las protecciones de cobertura continua de Medicaid también terminarán. Esto significa que cualquier persona que haya abandonado el programa durante la pandemia perderá la cobertura cuando finalice su renovación.

Pero Siegfried confía en que se elimine el límite de edad cuando se apruebe el próximo presupuesto.

"Si las personas quieren seguir trabajando y disfrutan de su trabajo y no quieren jubilarse, deberían poder ser ciudadanos productivos," asegura Siegfried. "A menudo el trabajo puede dar sentido a la vida, sobre todo en el caso de las personas con discapacidad."

Señala que las personas con discapacidad no tienen altas tasas de empleo en el estado, lo que posiblemente se correlacione con una pérdida de cobertura en caso de que vayan a trabajar.

Según un informe de 2022, en Nueva York hay un millón de adultos con discapacidad en edad laboral. Sin embargo, sólo el 33% están desempleados, en comparación con la tasa de empleo del 74% para los adultos en edad de trabajar en todo el estado.

Thirteen students, ranging in age from 14 to 21, have just graduated from the Iowa Developmental Disabilities Council Youth Leadership Academy.

The program's goal is to develop young leaders who learn skills that build their confidence.

A dozen students from Iowa welcomed one from Illinois who is attending school in Iowa. Together, they learned during the weeklong academy how to be more effective advocates for their communities.

That's exactly what 21-year-old Andrew Allen, who has been diagnosed with ADHD, autism and severe separation anxiety, was looking for when he applied.

"I got bullied a lot," said Allen. "When I was in school, I got pushed aside a lot and I thought, 'Enough is enough.' They taught me how to communicate, have conversation with special needs, and help our community."

The annual academy teaches students ways to advocate for themselves, become more civically engaged and to be of service in their communities.

19-year-old University of Iowa student Jackie Corless, who said she has an intellectual learning
disability, also took part in the Youth Leadership Academy.

She said the topics ranged from advocacy to communicating, and lots of useful skills in between.

"Leadership skills," said Corless. "I learned about networking, setting goals - you know, the difference between how to be an advocate and how to better strengthen your advocate goal. How networking really works within the disability world."

The Youth Leadership Academy is a partnership between the Iowa Developmental Disabilities Council, Disability Rights Iowa, ASK Resource Center, the University of Iowa Center for Excellence in Developmental Disabilities, and Access to Independence.



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New York disability-rights advocates are celebrating the 34th anniversary of the passage of the Americans with Disabilities Act.

The 1990 legislation prohibits discrimination against people with physical or mental disabilities. Along with becoming a standard part of employment law, it bolsters accessibility in the public environment.

As seminal as the ADA is, said Dr. Sharon McLennon Wier, executive director of the Center for Independence of the Disabled New York, more work must be done to achieve true accessibility.

"Even though ADA has been around for many, many years," she said, "there is still ignorance regarding what is true accessibility and how new construction at times can still be put up without following the principles of ADA universal access."

Downstate New York's transportation systems lack ADA compliance. Only 31% of New York City's Subway system is accessible to people with disabilities. Funding has been allocated to make the system 95% compliant. The work would have been done by 2055, but since Gov. Kathy Hochul paused congestion pricing, these plans have been put on hold indefinitely.

A New York City Comptroller report finds only 40% of the city's disabled population is employed. Statewide reports show post-pandemic employment for people with disabilities is recovering much slower than the nation.

To change this, said McLennon Wier, classroom instructional materials need to be more accessible, "having more raised line drawings, having more Braille available, having more assistive technology that can read various types of charts and diagrams."

She said she thinks certain industries are siloed, but once they open up to better comprehend universal accessibility, more people with disabilities will join them. One place this can work is in STEM fields, as only 3% of that workforce includes people with disabilities.

July is Disability Pride Month, and today is the 34th anniversary of the signing of the Americans with Disabilities Act.

Federal data show that more than 42 million Americans have a disability affecting their cognition, mobility, hearing, vision or ability to provide self-care or live independently.

"Studies over and over demonstrate that people with disabilities are a very solid
part of our workforce," said Joe Xavier, director of the California Department of Rehabilitation, which helps people with disabilities thrive at work. "They stay in their jobs, they're committed to the work that they do, and so there's much less turnover with people with disabilities, thereby reducing the cost and all the work associated with that."

Advocates have said companies are responsible for providing accommodation in the same way they provide chairs and technology for all their workers. They encourage companies to follow principles of universal design when building new spaces, so access is not an afterthought.

Britanny Comegna, a member of the State Rehabilitation Council, runs a company called Deaf and Disability Mediation Services and said people shouldn't be shy about direct communication with disabled people.

"When you meet a new disabled person," she said, "you have to ask, 'How do you want to identify? What do you need? And what can I learn from you?' Ask those questions because we really do appreciate that you're making that effort to connect with me and understand me as a person."

The Centers for Disease Control and Prevention is working to reduce health disparities among adults with disabilities, who have higher rates of smoking, obesity, heart disease and diabetes.


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