While some Nevada laws such as Senate Bill 68 aim to increase supportive housing for those with behavioral, mental and physical disabilities, others say such proposals simply do not go far enough when it comes to accessible housing.
Ace Patrick, board member of the Nevada Statewide Independent Living Council, knows firsthand the struggle of having to look for housing. Patrick said not only does more need to be done to get at the root of the problem which many with disabilities face, but lawmakers need to do better in listening to their disabled constituents who have unique challenges.
"I really do believe we need to do more cooperative living here," Patrick contended. "I think we are kind of missing the mark on that. We need more intentional community housing. We need multigenerational housing. We need housing where you have people of all incomes."
Patrick pointed out Betty's Village in Las Vegas, an independent living community for adults with disabilities, is a model for what housing should look like for all disabled Nevadans across the state. The establishment is compliant with the Americans with Disabilities Act.
Patrick noted as an advocate for their community, they feel issues brought up to Nevada legislators "fall on deaf ears." Patrick commended Asw. Tracy Brown-May, D-Las Vegas, and Asw. Lesley Cohen, D-Henderson, for listening to the concerns of those in the disability community, but realizes it is only two lawmakers out of many.
Patrick added the Nevada Statewide Independent Living Council is aiming to get more individuals with disabilities directly involved in the legislative process.
"We may give public comment, or we may say, 'Hey, this is not going to work for us,' and then the bills get passed," Patrick explained. "What does that say? That said that 'you aren't very significant.' Yes, we allowed you some space to talk, but beyond that we are going to do what we are going to do?"
Patrick added many intellectual and developmentally disabled individuals are struggling to make ends meet on fixed incomes, a problem exacerbated with increasing housing costs. They say many fortunate individuals receive help to pay rent from family members, but added it would not be a permanent fix to the issue.
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New York disability-rights advocates are celebrating the 34th anniversary of the passage of the Americans with Disabilities Act.
The 1990 legislation prohibits discrimination against people with physical or mental disabilities. Along with becoming a standard part of employment law, it bolsters accessibility in the public environment.
As seminal as the ADA is, said Dr. Sharon McLennon Wier, executive director of the Center for Independence of the Disabled New York, more work must be done to achieve true accessibility.
"Even though ADA has been around for many, many years," she said, "there is still ignorance regarding what is true accessibility and how new construction at times can still be put up without following the principles of ADA universal access."
Downstate New York's transportation systems lack ADA compliance. Only 31% of New York City's Subway system is accessible to people with disabilities. Funding has been allocated to make the system 95% compliant. The work would have been done by 2055, but since Gov. Kathy Hochul paused congestion pricing, these plans have been put on hold indefinitely.
A New York City Comptroller report finds only 40% of the city's disabled population is employed. Statewide reports show post-pandemic employment for people with disabilities is recovering much slower than the nation.
To change this, said McLennon Wier, classroom instructional materials need to be more accessible, "having more raised line drawings, having more Braille available, having more assistive technology that can read various types of charts and diagrams."
She said she thinks certain industries are siloed, but once they open up to better comprehend universal accessibility, more people with disabilities will join them. One place this can work is in STEM fields, as only 3% of that workforce includes people with disabilities.
Disclosure: Center for Independence of the Disabled New York contributes to our fund for reporting on Disabilities. If you would like to help support news in the public interest,
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July is Disability Pride Month, and today is the 34th anniversary of the signing of the Americans with Disabilities Act.
Federal data show that more than 42 million Americans have a disability affecting their cognition, mobility, hearing, vision or ability to provide self-care or live independently.
"Studies over and over demonstrate that people with disabilities are a very solid
part of our workforce," said Joe Xavier, director of the California Department of Rehabilitation, which helps people with disabilities thrive at work. "They stay in their jobs, they're committed to the work that they do, and so there's much less turnover with people with disabilities, thereby reducing the cost and all the work associated with that."
Advocates have said companies are responsible for providing accommodation in the same way they provide chairs and technology for all their workers. They encourage companies to follow principles of universal design when building new spaces, so access is not an afterthought.
Britanny Comegna, a member of the State Rehabilitation Council, runs a company called Deaf and Disability Mediation Services and said people shouldn't be shy about direct communication with disabled people.
"When you meet a new disabled person," she said, "you have to ask, 'How do you want to identify? What do you need? And what can I learn from you?' Ask those questions because we really do appreciate that you're making that effort to connect with me and understand me as a person."
The Centers for Disease Control and Prevention is working to reduce health disparities among adults with disabilities, who have higher rates of smoking, obesity, heart disease and diabetes.
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Advocates for individuals with disabilities want the state of Nevada to further embrace what is known as the "independent living" model.
Dawn Lyons, executive director of the Nevada Statewide Independent Living Council, said the philosophy is centered around people with disabilities being their own experts on their needs and the services they require. Lyons acknowledged within the state's disability community, there exists what she called "inter-conflict," leading to a lack of a unified voice and sending mixed signals to policymakers.
"Even though we have these other voices interfering, saying different things, what it comes down to is 'We don't need to fight each other,'" Lyons emphasized. "I think the reason why we end up with that inter-conflict is because we've been put down so often and we've been told that we don't matter."
Lyons has been with the council for the last eight years and pointed out progress has been made but more needs to be done. She argued education related to independent living is key to moving the needle and the council supports developing educational materials as well as consulting with a state currently employing an effective independent living approach. Lyons explained one of those states could be Colorado, which she adds even has its own independent living agency.
John Rosenlund, program director for the Nevada Assistive Technology Collaborative, said independent living boils down to empowerment. He said he recognizes the state cannot move forward with implementing a philosophy if there are those who do not agree with it or are comfortable with the status quo.
Rosenlund contends centers for independent living across the state have strayed from independent living values such as peer support, individual and systems advocacy and independent living skills training.
"Things aren't right, they've lost the meaning of what independent living is, perhaps," Rosenlund suggested. "Or they're too focused on certain things so that stability at centers for independent living is, in my mind, instrumental."
Rosenlund added the lack of awareness and adoption of independent living's core values is having real effects across the state, with some missing out on real opportunities to enhance their lives. He reminded people without any change or challenge, there will not be any growth.
Disclosure: The Nevada Statewide Independent Living Council contributes to our fund for reporting on Disabilities, Poverty Issues, and Social Justice. If you would like to help support news in the public interest,
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