Una organización nacional sin fines de lucro se está pronunciando sobre una demanda federal presentada la semana pasada contra funcionarios de California, en la que se impugna la Ley de Opción Final de Vida del estado.

Los demandantes afirman que la ley que entró en vigor el año pasado, discrimina a las personas con discapacidad al violar la Ley de Estadounidenses con Discapacidades.

Kim Callinan, C-E-O del grupo Compassion & Choices, señala que una discapacidad por sí sola no califica a una persona para recibir ayuda médica para morir.

Añade que una encuesta nacional muestra que es una opción de atención al final de la vida que la gente cree que debería estar disponible.

"La demanda actual que se ha presentado hace afirmaciones que no concuerdan con lo que demuestran los datos," dice Callinan. "Sabemos que ocho de cada diez personas con discapacidad desean y apoyan la opción de la ayuda médica para morir."

Diez estados autorizan ahora a los médicos a ofrecer a los adultos mentalmente sanos y con enfermedades terminales la opción de solicitar medicamentos recetados que podrían elegir tomar, para morir suavemente mientras duermen, en caso de que su sufrimiento se haga insoportable.

Los estudios muestran que el diagnóstico más frecuente entre los enfermos terminales que pueden optar a la ayuda médica para morir es el cáncer. Desde enero, se han presentado proyectos de ley para autorizar la ayuda médica para morir en 14 estados.

La Dra. Chandana Banerjee, que enseña medicina paliativa y practica la ayuda médica para morir en el Centro Médico Nacional City of Hope, dice que es importante que la gente entienda qué es y qué no es la ayuda médica para morir.

Las personas discapacitadas que podrían acogerse a la ley deben tener un pronóstico de seis meses o menos de vida, y Banerjee afirma que, incluso así, es posible que no cumplan los requisitos.

"Estos pacientes terminales deben cumplir otros criterios de elegibilidad y seguir un proceso de varios pasos para obtener las recetas," asegura Banerjee "contrariamente a la creencia de que nadie puede levantarse una manana y acceder a la ayuda médica para morir."

La ley también exige que el médico que atiende al paciente le asesore sobre "alternativas viables u opciones de tratamiento adicionales, incluidos, entre otros, cuidados paliativos y control del dolor".

Los estudios realizados en nueve jurisdicciones en las que está autorizada la ayuda médica para morir muestran que más de un tercio de los enfermos terminales adultos que reciben recetas de ayuda médica para morir no toman la medicación.

New Mexico saw record enrollment numbers for the Affordable Care Act this year and is now setting its sights on lowering out-of-pocket costs - those not reimbursed by insurance. More than 56,000 New Mexicans are enrolled in a medical health insurance plan on the state exchange - an increase of 12,000 people overall.

Colin Baillio, deputy superintendent with the state's Office of Insurance, said the state has boosted its outreach and made efforts to improve the overall consumer experience.

"We saw a 40% year-over-year increase, and New Mexico saw the biggest percentage increase during the open-enrollment period among all of the state-based marketplaces," he explained

Part of the enrollment increase is due to what's called the "unwinding" - a federal directive that required all states to redetermine Medicaid eligibility following a three-year pause on checks during the COVID pandemic. He said by using expanded tools made available by the federal and state government, 8% of New Mexico's population is now uninsured - down from 23% in 2010.

Following approval by lawmakers in the 2024 legislative session, the New Mexico governor signed seven health care-related bills into law - one of which requires annual reporting of prescription drug pricing. Baililo said the Affordable Care Act built the foundation that has allowed the state to pursue additional affordability initiatives.

"I'm really glad to see that there's so much interest in the next step of health reform, really leaning into these out-of-pocket cost issues and making it easier for people to afford to stay covered and see their doctors," he continued.

Two years ago, the state also passed a one-of-a-kind law that did away with behavioral health co-pays for people in certain insurance plans.

New York's medical aid-in-dying bill is gaining further support. The Medical Society of the State of New York is supporting the bill. New York's bill allows terminally ill people with only six months to live to use this option, with safeguards requiring two physicians' approval.

The bill's Assembly sponsor Amy Paulin, D-Westchester, said despite the growing support, other hurdles lie ahead.

"Now we have what I believe, if it came to the floor, a majority. There's still a hesitation on the part of leadership. You know, we need members to assure leadership that they no longer have reservations," she said.

Other newly resolved concerns center on making sure insurance companies and doctors who don't support this aren't held liable. She's optimistic the bill will pass after nine years in the Legislature. New York would be the 11th state along with Washington, D.C. to have medical aid in dying legislation.

Corinne Carey, senior New York campaign director with Compassion and Choices finds the pandemic drew a vivid picture of a person's end-of-life experience. There were images of people dying on ventilators, apart from loved ones, and unable to communicate. She said people began thinking about a "good death."

"And, what is a good death is being surrounded by loved ones, having some measure of control, experiencing the touch of your loved ones, and being the one in the driver's seat," she explained.

Now people have different options for end-of-life care, each of which presents various challenges. Polls show medical aid in dying has garnered considerable support since being introduced in 2015. A 2022 Compassion and Choices poll finds 57% of nurses support medical aid in dying professionally, although fewer support it personally.

The California State Assembly is considering a bill to require schools to have a cardiac arrest response plan. Assembly Bill 2887 would make sure schools update their safety plans to include CPR training and an automatic external defibrillator or AED onsite.

Dr. Stephen Sanko, a professor of clinical emergency medicine at USC, and a founding member of the Cardiac Arrest Survivor Alliance, is a volunteer expert for the American Heart Association. He said having a plan in place is critical.

"The American Heart Association is promoting that schools have a cardiac arrest response plan. A written protocol for what to do in order to decrease the likelihood that if somebody collapses, that they die," he said.

Two years ago, 15-year-old Cash Hennessy collapsed on the football field due to a previously unknown heart defect. Two off-duty medics in the stands gave him CPR. The school brought out its AED - but it was useless, because the batteries were dead.

Hennessy said the experience was traumatic.

"I feel blessed that I had people there for me, that could give me C-P-R. But I think about if those people weren't there and that was another kid, who knows what would have happened? Because there wouldn't have been an AED to save them," he explained.

An AED walks people through the steps to deliver a life-saving shock to a person's heart until an ambulance arrives. Studies show that 70% of kids who suffer sudden cardiac arrest at school recover if an AED is deployed correctly - whereas the survival rate for kids and adults not in the hospital is less than 12%.