The Iowa Alzheimer's Association expects about 2,000 people to gather on the Capitol steps in Des Moines on Saturday, as volunteers seek to create the world's biggest walk to raise money for research.
About 66,000 Iowans suffer from Alzheimer's disease, and nearly 100,000 more are caregivers, often unpaid family members who help with routine personal needs and daily activities.
Iowa Alzheimer's Association volunteer Chantelle Cadek said the group hopes to raise a half-million dollars to bolster research, fund treatment options - and ultimately, find a cure. Contrary to popular belief, she said, Alzheimer's is not routine.
"Alzheimer's is not a normal part of aging," she said. "It is a disease. Not everyone gets it. Age is the biggest risk factor for people to get Alzheimer's, but definitely it is not a normal part of aging."
According to the Alzheimer's Association, 6 million Americans nationwide live with the disease, and 11 million family members serve as caregivers.
The U.S. Food and Drug Administration recently approved two new drugs said to slow the progression of Alzheimer's disease: Leqembi and Aduhelm. As of now, however, there is no cure. Despite being most prominent in older people, their caregivers - often spouses - are least likely to ask for help.
Cadek said education is the only way to change that.
"The reality is that, unfortunately, Alzheimer's is a fatal diagnosis," she said. "There's currently no cure for it. At some point, most people need help, so I would encourage those folks to just reach out. The Alzheimer's Association is a wonderful resource; there's a 24-7 helpline."
The Des Moines walk participants will carry purple, yellow, blue and orange flowers, which represent the different reasons they are walking. The event starts at 9 a.m. Saturday.
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For many, the holiday season is a time of joy and celebration - but it can often bring loneliness and isolation for older adults.
Steve Morrison, a volunteer with AARP Virginia, described the holidays as the worst time for isolation - a challenge he knows well after years of caregiving for his wife.
He highlighted mobility as a significant issue for seniors with limited ability to walk, access transportation, and manage health challenges.
Drawing from his own experiences, Morrison has been addressing isolation through community-building efforts, a mission he began well before the COVID-19 pandemic intensified the problem.
"You have to get out there some way, either online, by phone, or in conversation with neighbors - and let people know that you're in isolation and you just need someone to talk to," said Morrison. "At least in my neighborhood, that has worked for me and for others. The neighbors have really stepped up. "
Morrison launched a monthly luncheon in McLean, Virginia, to help people connect over a meal.
The initiative has been a success, with up to 50 attendees per event, though he now caps it at 40 after an earlier turnout of 75 overwhelmed the venue.
He recommended resources like the National Institute on Aging, and AARP's Connect2Affect program - which offer tools to assess isolation, find volunteer opportunities, and access local support.
While Morrison's program is one of the few remaining events in his area since COVID, he said he hopes to inspire others to create similar opportunities.
He said he was deeply moved by how his neighbors rallied to provide meals when surgeries left him and his wife homebound.
"You just gotta be proactive. Even though you may be limited to transportation or your mobility. You just got to let people know, you have neighbors close by that are more than willing to help," said Morrison. "So that would be the first place that I would start. But these other websites if you have technology options, all have really good suggestions. "
Such as the Fairfax County Virginia website.
According to AARP, there is a 26% increased risk of early death due to feeling lonely.
Some other tips to combat isolation include adopting a pet if you can care for one, signing up for classes at your local library, restarting an old hobby, or scheduling set times to interact with family and friends - in person, by email, social media, voice call, or text.
However, Morrison cautioned against too much dependence on social media.
Disclosure: AARP Virginia contributes to our fund for reporting on Consumer Issues, Health Issues, Hunger/Food/Nutrition, Senior Issues. If you would like to help support news in the public interest,
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Older Idahoans have an opportunity to speak with Governor Brad Little next week.
AARP Idaho is hosting a telephone town hall with the governor, providing an opportunity for members to ask questions ahead of the 2025 legislative session.
State Director of AARP Idaho Lupe Wissel said people could have questions about health care, housing affordability, or property taxes, for instance.
"It's a very unique opportunity and one that is not offered to everyone," said Wissel, "and we do this regularly because it is very important that the elected officials do hear the voices of the 50+ community in this state."
The Idaho legislative session starts on January 6. The town hall will be held on November 25 at 3 p.m. Mountain time, 2 p.m. Pacific.
People can join at 866-767-0637 or online at AARP Idaho's Facebook page.
Wissel said AARP Idaho holds town halls with the state's leaders on a regular basis. She said elected officials know it's important to hear from older Idahoans.
"They know that this is a big constituency, large constituency," said Wissel. "They really pay attention to what's happening and they want to make sure that their voices are heard, and they want to listen to what they have to say."
Wissel noted that older Idahoans make up a large voting bloc in the state. She said in the 2022 election, people age 50 and older were 64% of the electorate.
Nearly 630,000 Idahoans are 50 and older.
Disclosure: AARP Idaho contributes to our fund for reporting on Consumer Issues, Energy Policy, Health Issues, Senior Issues. If you would like to help support news in the public interest,
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The Iowa Alzheimer's Association chapter is making new resources available to caregivers during November, a month set aside to educate and help people with the disease and those who care for them.
Nearly 100,000 Iowans are family caregivers, helping more than 62,000 people living with this form of dementia.
Erica Eikern - program manager with the Alzheimer's Association, Iowa chapter - said the group is making a huge effort this month in particular to get resources to those caregivers, letting them know they are not alone.
"We have approximately 50 local caregiver support groups, in many communities across the state of Iowa," said Eikern. "We also have a virtual support group that we just started for young adult caregivers who are taking care of a parent or older family member."
Nationally, nearly half of all caregivers who provide help to older adults are doing so for someone with Alzheimer's disease, according to data on the association's facts and figures website.
Eikern said the association is working at the state level to give those caregivers some respite options.
Eikern said caring for a person with Alzheimer's can take a heavy physical and emotional toll. So, she said the association is trying to make sure they know help is available.
"At our Iowa chapter, we're averaging about 30 programs that we're doing per month, out in various communities throughout the state," said Eikern. "We have a goal of trying to reach everyone in all 99 counties through our awareness presentations, through support services."
Those resources are also available on the association's website.
More than 11 million people in the U.S. are providing unpaid care to a person living with Alzheimer's or other form of dementia. Last year alone, that care was valued at more than $346 billion.
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