skip to main content
skip to newscasts

Friday, July 26, 2024

Public News Service Logo
facebook instagram linkedin reddit youtube twitter
view newscast page
play newscast audioPlay

Arson attacks paralyze French high-speed rail network hours before start of Olympics, the Obamas endorse Harris for President; A NY county creates facial recognition, privacy protections; Art breathes new life into pollution-ravaged MI community; 34 Years of the ADA.

view newscast page
play newscast audioPlay

Harris meets with Israeli PM Netanyahu and calls for a ceasefire. MI Rep. Rashida Tlaib faces backlash for a protest during Netanyahu's speech. And VA Sen. Mark Warner advocates for student debt relief.

view newscast page
play newscast audioPlay

There's a gap between how rural and urban folks feel about the economy, Colorado's 'Rural is Rad' aims to connect outdoor businesses, more than a dozen of Maine's infrastructure sites face repeated flooding, and chocolate chip cookies rock August.

Bill in NE would allow parents to 'opt out' of newborn screenings

play audio
Play

Wednesday, February 21, 2024   

Every state has been screening newborns for several decades, usually performing a heel-prick blood test, a hearing test and a heart check.

Several disorders diagnosed through newborn screenings can be treated and their effects significantly reduced when caught early.

Sen. Ben Hansen, R-Blair, said Nebraska is one of only three states without a provision for parents to "opt out" of newborn screening for religious or other reasons. His bill, Legislative Bill 1060, would change that.

Hansen noted constituents brought this issue to his attention, pointing out refusing the screenings can result in a lawsuit, lack of a birth certificate and even the possibility of the state taking a child away.

"That kind of philosophically goes against my idea of a parent's liberty to either object or accept doing a test such as this," Hansen explained.

In 2008, Nebraska's Department of Health and Human Services temporarily removed a child from parents who refused the newborn screening based on their religious beliefs. The case reached the Nebraska Supreme Court, which determined the state's mandated screenings do not violate the free exercise of religion provisions in the Nebraska Constitution. The court noted the screenings test for conditions which, untreated, "can lead to mental disabilities, loss of hearing, loss of vision, irreversible brain damage, or death."

Hansen stressed his bill only leads to a change in the state's newborn screening protocol if the parents or guardians specifically request it.

"Only if the parent actually engages with the hospital or the doctor and says, 'Hey, look, I do not want this test on my child,'" Hansen emphasized. "It's not like when you go to the hospital to have a baby, the doctor says, 'OK, so do you want to have this test done?' They don't even ask that question; it's just done."

Julie Luedtke managed Nebraska's Newborn Screening Program for 24 years before retiring. She is concerned about treatable disorders being missed if parents opt out of newborn screenings.

"Every year, just in Nebraska, somewhere between 50 and 60 babies with one of these clinically significant diseases gets identified, and gets into treatment, and has these terrible things prevented," Luedtke stressed.

When she managed the screening program, Luedtke surveyed her peers in states with an "opt out" provision, asking whether any babies whose parents opted out of the screenings were later found to have disorders. She noted there were a number of them, including a baby who died at eight days of age from galactosemia, the inability to process the sugar galactose present in breast milk, cow's milk and other dairy products.

"She's feeding her baby, not knowing that's basically killing the baby," Luedtke recounted. "If they'd done the screen and gotten the results back, they'd know to get that baby changed right away and onto a soy formula, and the baby would have been fine. Sadly, that baby died."

The measure had its first hearing on Jan. 31 in the Health and Human Services Committee. As yet, no further action has been taken.


get more stories like this via email

more stories
According to the Tax Policy Center, for higher-income earners, sales taxes consume a lower share of their income than for other households. (Vitalii Vodolazskyi/Adobe Stock)

Social Issues

play sound

As Nebraska state lawmakers convene for a special session on property tax reform called by Gov. Jim Pillen, groups are weighing in on the details …


play sound

Traveling around rural Minnesota can be difficult but in more than half the state, nonprofit transit systems are helping people get where they need …

Social Issues

play sound

Student loan forgiveness took center stage on Thursday at the American Federation of Teachers conference. The Biden administration has canceled more …


Sen. Elizabeth Warren, D-Mass., has introduced legislation to codify the Chevron Deference into law. (Adobe Stock)

Social Issues

play sound

Recent Supreme Court rulings on air pollution are affecting Virginia and the nation. Climate advocates said the court overstepped its bounds in …

Health and Wellness

play sound

World Hepatitis Day is this Sunday, and for the Oregon Health Authority, it's an opportunity to promote its plan to eliminate hepatitis across the …

The Gender Shades project revealed facial recognition performed poorest for darker-skinned women, and performed best for lighter-skinned men. (Adobe Stock)

Social Issues

play sound

Columbia County, New York, is implementing new facial recognition and privacy policies, following new upgrades to the county's surveillance cameras…

Health and Wellness

play sound

New York disability-rights advocates are celebrating the 34th anniversary of the passage of the Americans with Disabilities Act. The 1990 …

Social Issues

play sound

As summer winds down and North Carolina students prepare to return to school, the focus shifts to the urgent need for better public education funding…

 

Phone: 303.448.9105 Toll Free: 888.891.9416 Fax: 208.247.1830 Your trusted member- and audience-supported news source since 1996 Copyright © 2021