Advocates for individuals with disabilities want the state of Nevada to further embrace what is known as the "independent living" model.

Dawn Lyons, executive director of the Nevada Statewide Independent Living Council, said the philosophy is centered around people with disabilities being their own experts on their needs and the services they require. Lyons acknowledged within the state's disability community, there exists what she called "inter-conflict," leading to a lack of a unified voice and sending mixed signals to policymakers.

"Even though we have these other voices interfering, saying different things, what it comes down to is 'We don't need to fight each other,'" Lyons emphasized. "I think the reason why we end up with that inter-conflict is because we've been put down so often and we've been told that we don't matter."

Lyons has been with the council for the last eight years and pointed out progress has been made but more needs to be done. She argued education related to independent living is key to moving the needle and the council supports developing educational materials as well as consulting with a state currently employing an effective independent living approach. Lyons explained one of those states could be Colorado, which she adds even has its own independent living agency.

John Rosenlund, program director for the Nevada Assistive Technology Collaborative, said independent living boils down to empowerment. He said he recognizes the state cannot move forward with implementing a philosophy if there are those who do not agree with it or are comfortable with the status quo.

Rosenlund contends centers for independent living across the state have strayed from independent living values such as peer support, individual and systems advocacy and independent living skills training.

"Things aren't right, they've lost the meaning of what independent living is, perhaps," Rosenlund suggested. "Or they're too focused on certain things so that stability at centers for independent living is, in my mind, instrumental."

Rosenlund added the lack of awareness and adoption of independent living's core values is having real effects across the state, with some missing out on real opportunities to enhance their lives. He reminded people without any change or challenge, there will not be any growth.

Wayne State University has received a $1.25 million grant to prepare adapted physical education specialists to serve students with disabilities.

The program, called Project SUPPORT, will train instructors to address a critical shortage of special education instructors, in Michigan and across the nation.

Leah Ketcheson, associate professor of health and physical education teaching at the university, said teachers will customize the physical education curriculum to help students improve their motor and social skills, self-esteem and sportsmanship.

"We are really trying to build that core confidence for children with disabilities but we're also trying to build a model where all children are feeling included, in a more inclusive setting," Ketcheson explained.

She pointed out Project SUPPORT will provide funding, training and support for 37 individuals to become adapted physical education teachers over the next five years.

Ketcheson noted the persistent shortage of special education personnel, particularly adapted physical education specialists, affects the quality of services available to students with disabilities. The project will prioritize urban school districts across Michigan and in other states, where shortages are most often severe.

"Ultimately, if we can train teachers better, we can have greater educational outcomes for our Pre-K-12 students in Detroit public schools, in Dearborn and our urban partners," Ketcheson emphasized.

Ketcheson added Project SUPPORT will prepare a diverse group of teacher-scholars including multilingual and racially and ethnically diverse candidates to serve students from ages 3 through 26 who have disabilities and high-intensity needs.

"We are an urban institution in an urban city, and now, we have this platform to extend our reach even greater," Ketcheson stressed. "Ultimately improving the educational and health outcomes of children with disabilities in Detroit and surrounding communities."

Disability groups in New Hampshire are calling for an end to the word "special" to describe people with disabilities.

They said terms like "special" or "special needs" imply people are somehow broken and undermine the long-term fight for disability rights.

Isadora Rodriguez-Legendre, executive director of the New Hampshire Council on Developmental Disabilities, said when people ask not to be called a certain word, it should be reason enough not to use it.

"It really is a label that kids and adults with disabilities found to be alienating," Rodriguez-Legendre explained. "Because it kept them apart and separate."

Rodriguez-Legendre pointed out a new public awareness campaign encourages people to visit the website stopspecial.org and read a more appropriate language guide. Nearly one of every eight New Hampshire residents has a disability.

Backers of the "Stop Special" campaign said language is evolving and such euphemisms as "special needs" or "special education" need correction. Rodriguez-Legendre emphasized students should simply be called "students," or even "students with disabilities." She understands it will not be an easy change, especially for those who work with laws and regulations but added the goal is to ensure equitable access to education and public spaces.

"Communities actually are better when people with disabilities are participating in them, because they bring awareness about how to make things more accessible for everybody," Rodriguez-Legendre contended.

The "Stop Special" campaign is backed by the Institute on Disability at the University of New Hampshire, the Disability Rights Center of New Hampshire and the New Hampshire Council on Developmental Disabilities.


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The U.S. Office for Civil Rights has issued a ruling ensuring that an Iowa man with disabilities is able to live in his home and receive round-the-clock medical care.

Advocates for people with disabilities hope the move sets precedent for other people in Iowa and around the country.

When he was about five, Cedar Rapids resident Garret Frey suffered the same spinal cord injury that Superman star Christopher Reeve did in an equestrian accident.

Reeve lived for about a decade after his accident.

Frey is closing on 40 years, and sued the state, claiming it violated his rights by failing to provide the 24-hour home-based support and services he needs to live at home, where he said people with disabilities want to be.

"It is truly where most of us are happy, healthy," said Frey, "and it's most cost-effective."

The U.S. Department of Health and Human Services agreed to raise the provider reimbursement rate for in-home caregivers, allow for respite services, expand the health-care provider base - and help secure overnight, in-home nursing care for Frey.

HHS will monitor Iowa's progress for a year. Frey said he wants this ruling to set precedent for other people with disabilities in Iowa and across the country.

"It's one baby step in the right direction," said Frey, "because there are many other disability-related concerns and issues that are ongoing."

The ruling requires Iowa Health and Human Services to work with federal officials to ensure Frey's needs are met during that year, and report on their progress monthly.