Advocates for people battling Alzheimer's disease and their families are marching in Des Moines this weekend to raise money for brain research and ultimately, to find a cure.

Alzheimer's is a degenerative brain disease and the most common cause of dementia.

Lauren Livingston, communications director for the Iowa chapter of the Alzheimer's Association, said marchers are trying to raise $500,000 and while the funds are critical, she stressed the point of the event goes beyond raising money.

"I've heard a lot of people who come to the event who are personally affected say that they feel like it's kind of a big support group," Livingston explained. "Where you are getting together with other families who have been through something the same, or very similar, to what you've been through with your loved one."

Roughly 62,000 Iowans suffer from Alzheimer's disease and Livingston pointed out the number grows every year. At least 100,000 family members and caregivers in the state are also directly affected.

The Alzheimer's Association reported the number of disease-related deaths doubled between 2000 and 2021, despite a huge increase in research. Nationwide, 7 million people have been diagnosed, and at least 11 million caregivers are directly affected. Livingston noted money raised during the march will be used to provide services to them, too.

"Services like support groups for caregivers and education programs to help people learn about the disease and what to expect if a loved one is living with it," Livingston outlined. "We're there to help caregivers right now, when they're in the middle of the disease with their loved one."

There still is no cure for Alzheimer's disease but federal regulators have recently approved medications that can slow its progression.


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A 2024 study showed almost 26% of Nebraskans reported having a mental-health illness in the past year -- nearly 3% higher than the national average.

Providers and stakeholders of Nebraska's behavioral health care system face uncertainty as more budget cuts loom. In the last legislative session, $15 million was cut from the state's behavioral health services budget and the heads of state government divisions are now being asked to find more cuts.

Tiffany Gressley, regional administrator for Region 3 Behavioral Health Services, questioned how cuts to behavioral health align with Nebraska's conservative values.

"We're being fiscally conservative by serving these people early; as early as we can," Gressley pointed out. "We're saving money and we're saving, on top of that, the human cost that goes along with untreated mental health conditions. "

Gressley explained last year's cut brought the total budget reductions to Nebraska's behavioral health system to nearly $50 million over the past six years, much of it from unfunded provider rate increases. She stressed budget cuts mean fewer Nebraskans receive services.

Among Nebraska counties, 88 of 93 had a shortage of behavioral health providers in 2023, and 29 had none at all. Many rural Nebraskans face considerable challenges accessing behavioral health care, which advocates said further budget cuts will only exacerbate.

Sadie Thompson, chief innovation officer for the Lincoln-based Wellbeing Initiative, an organization providing services for mental health, substance use and chronic physical health conditions, said after a nearly 12% cut to its budget this fiscal year, the organization had to close satellite locations in Fairbury and Geneva and was unable to open one planned for Seward.

"All of these rural communities that we were really starting to see lots of engagement with and impact basically got the rug pulled out and weren't able to continue to have these services," Thompson noted. "These communities don't have services anyway."

Bob Shueey, CEO of South Central Behavioral Services in Hastings and Kearney, said they are constantly looking for qualified therapists and frequently have to turn patients away as a result. Shueey added the state's low provider rate combined with retirements has depleted the state's behavioral health workforce. He argued without attention, the situation will only worsen.

"Even if we raise the rates to a sustainable rate today, it's a multiyear pipeline before someone's even able to start working," Shueey emphasized. "Then that information has to be out there to new students and to young people. 'I'll be able to make my house payment and pay my student loans if I do this; I'm not going to be poor my whole life.'"


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One in four Californians is an immigrant and a new report showed many are refugees who may need mental health services but have trouble finding treatment.

Researchers from the California Pan-Ethnic Health Network found a pressing need for culturally-responsive behavioral health services.

Vincent Chou, community advocacy manager for the group, said many barriers can hinder access.

"These communities face distinct challenges such as trauma from displacement, stress, language barriers, and systemic discrimination," Chou outlined. "All of which contribute to why they're not really utilizing the mental health services that are available to them."

Community groups said they have seen a huge increase in demand for mental health services since the pandemic. The report also called for training on trauma-informed care for providers and county workers who assist immigrants.

Mary Anne Foo, executive director of the Orange County Asian and Pacific Islander Community Alliance, said California faces a dire shortage of bilingual, bicultural mental health providers; people who can better connect with patients.

"When they see a counselor who can speak their language, they're more apt to be able to describe what's going on with them," Foo pointed out. "Or to be able to participate fully in their care."

Ruqayya Ahmad, policy manager for the network, said the state needs to better fund community-based organizations so they can recruit mental health professionals from the populations they serve and offer competitive pay to retain them.

"They're the ones who have these trusted relationships," Ahmad emphasized. "They're helping to normalize mental health conversations and reducing that stigma that exists in some communities."

Vattana Peong, executive director of The Cambodian Family Community Center in Santa Ana, said the state also needs to make it easier for groups like his to get credentialed to accept Medi-Cal insurance.

"There are a lot of barriers for community-based organizations who want to become Medi-Cal mental health providers," Peong stressed. "That is something we need to fix."

He added community groups often offer wraparound services, like child care and transportation, making it easier for low-income families to access health services.

Oregon Health and Science University and Legacy Health have officially submitted merger plans to state regulators. Behavioral therapists at Legacy unionized in anticipation of this to protect themselves.

Sixty behavioral health therapists at Legacy Unity Center for Behavioral Health have voted to join the Oregon Nurses Association.

They're also doubling the size of an existing bargaining unit at the hospital, which includes other mental health workers.

Legacy Behavioral Health Therapist Meaghan Wilkinson-Smith said she and her coworkers didn't know about a potential merger until they heard it on the news.

"It worried people that we were going to continue to have no information," said Wilkinson-Smith, "and just be kind of blindsided by whatever decisions and changes Legacy decided to move forward with."

Wilkinson-Smith said with the union, they hope to have a more standardized pay structure.

ONA and other unions representing workers affected by the merger say they support it, based on assurances from OHSU - including on job security, pay parity, and honoring union contracts.

Access to mental health has been an issue in Oregon. A Mental Health America ranking from 2022 placed the state third to last.

Wilkinson-Smith said the union will help her and her colleagues better advocate for patients.

"We hope that we'll have more of a voice in expressing the things that we think could be helping our patients before they get to a point of needing hospitalization," said Wilkinson-Smith, "but also afterwards, and what that looks like for them."

Wilkinson-Smith also said the union will give them more of a voice in Salem when it comes to state policies.

Along with mental and behavioral health specialists, ONA represents more than 220 nurses at Legacy Unity Center for Behavioral Health.