NEW YORK - As the death toll from the COVID-19 pandemic continues to rise, a new initiative is helping Mexican immigrants living in the United States deal with issues of end-of-life planning.
Hispanic Americans are 18% of the U.S. population, but account for 25% of COVID deaths, adding extra urgency to things like advance directives for end-of-life care.
Patricia A. González-Portillo is National Latino Communications and Constituency Director with the organization Compassion & Choices. She says the collaboration with a national health outreach program from the Mexican Consulate should help reduce disparities in end-of-life planning and health care that negatively impact the immigrant community.
"We can catch this horrible virus that can kill us," says González-Portillo. "Are we going to wait 'til that happens before we have the conversation with our family about what I want in case I die from this illness?"
Compassion & Choices has assembled a free, bilingual COVID-19 toolkit, which is available online at 'CompassionandChoices.org.'
Maria Otero, Compassion & Choice's national constituency manager, points out there are Hispanic cultural values - such as the importance of family involvement and the influence of religion - that affect behavior at the end of life. And there are cultural barriers, too.
"There's not a word in Spanish about advance directives. We don't have a word for 'hospice,'" says Otero. "So, often we are perceived like we are not very assertive to what we want at the end of life."
She adds that the pandemic represents an opportunity to start important conversations among families about a topic that most people prefer to avoid.
Because COVID-19 is so contagious, currently incurable and the symptoms can advance quickly, González-Portillo stresses that everyone should complete an advance directive.
"That clearly details what the person wishes for at the end of life," says González-Portillo. "So that family members are not left with this task of guessing, 'What would my brother want?'"
She says without an advance directive, hospitals often are forced to make decisions about medical interventions and treatment that may not be what the patient would want.
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President Donald Trump's sweeping mass deportation plan has been scrutinized over the treatment of undocumented immigrants. One criticism has focused on the denial of their due process.
Eliut Ramirez, event coordinator, Indianapolis immigration law firm Gresk & Singleton and Giancarlo said immigrant rights are not acknowledged. The concerns he hears from the Latino community include not knowing what to expect with the nation's new immigration policies. He works to get the word out about the rights immigrants do have.
"Well, some people, unfortunately, don't know that they have certain rights, and a lot of people are afraid that ICE or the police are going to show up to their homes and take their family away if they are undocumented. We're also hearing a lot of people getting pulled over for traffic violations - they have a taillight out, or even if they look suspicious," he explained.
Ramirez said police are eyeing Latino motorists more closely and stop them to ask if they are documented. And he is hearing these incidents are increasing. The Census Bureau reports that Marion County is home to 14% of the state's Latino population.
Giancarlo Sucre. ice president of business development for the International District Community Center, said the facility offers resources and support while fostering collaboration and learning to drive positive change and prosperity on Indianapolis' westside. The center recently hosted an information and immigration rights fair. Sucre wants the public to understand that Latinos should not be grouped into one category.
"And it's a lot of mixed households," he explained. "That's one of the things that sometimes people don't think about. It's not an abstract - there's a lot of undocumented with documented in the same household. So it has a lot of effects on the community as a whole that's been there for many years, not just people recently. It tears families apart - part of them here, part of them there."
Sucre said he is not aware of any instances where ICE has appeared in Indianapolis' predominantly Latino neighborhoods.
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As the Trump administration's deportation efforts continue, more people find themselves in immigration court.
Immigration law is complicated, and most immigrants who navigate the court system do so by themselves.
Kelly Garcia, a reporter for Injustice Watch who covers immigration courts in Chicago, said the lack of legal representation and language barriers add to the complexity. Garcia noted almost no one she has encountered in the Chicago court speaks English, yet all the signs and case sheets are in English. Many show up late or miss their hearings because of it.
"If you miss your court hearing, the judge can order your removal," Garcia pointed out. "These barriers have very serious consequences for people - and it's very sad, honestly. It's very sad to witness that."
Garcia noted it is a misconception most immigrants speak Spanish. She has heard many other languages, from Arabic to Creole to Mandarin and said most people do not know they need to request a court interpreter in advance of their hearing or risk having their case delayed. Those who show up late or not at all could be immediately removed from the country.
Research shows those with legal representation fare better in court. But people in immigration court do not have the right to an attorney if they cannot afford one. The burden of proof, to show they were charged incorrectly or request temporary relief through asylum, falls on them.
Groups like the National Immigrant Justice Center and Legal Aid Chicago are on-site to help address some gaps. As the daughter of an immigrant, Garcia emphasized she can relate to the range of emotions she sees in court.
"It just feels very personal to me, because I know how it impacted my mom," Garcia recounted. "I know how hard and difficult that was for her and I also recognize that it's only gotten harder for a lot of people, especially for people who have migrated [from] very dangerous conditions, here."
Garcia added she has seen many people come to the U.S. for reasons beyond their control. She said her time covering the immigration court has prompted her to work on creating an "explainer" story to help answer the many questions she hears from defendants every day.
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Following President Donald Trump's executive order lifting Immigration and Customs Enforcement restrictions in protected areas, the American Federation of Teachers is offering guidance to colleges and universities, in Michigan and nationwide.
The AFT, National Immigration Law Center, and Presidents' Alliance teamed up to release a guide to help colleges handle ICE encounters - including establishing school protocols and understanding constitutional rights.
Eric Rader, AFT president at Henry Ford College in Dearborn, said the school provides support for its large Arab and Muslim student population affected by current events.
"All of our students at Henry Ford are eligible for free counseling in our counseling department," said Rader. "We also have a lot of affinity groups, student groups, that are a great place for students of Arab or Muslim descent to talk to other students."
Rader said the college also offers specialized support for international staff members.
Immigration law states that ICE can enter public areas of campus without a warrant, but an authorized official must approve access to non-public areas.
The guide instructs students and staff to notify the president or chancellor if law enforcement requests campus access or student records - or if officers are seen on or near campus questioning students.
Rader stressed that Henry Ford is committed to reassuring students and ensuring their safety.
"We've reminded everyone that federal laws like the Family Educational Rights and Privacy Act prohibits us from divulging information about the identities of our students to outside parties," said Rader. "And while we may have to comply with law enforcement if there are court orders, we and our students have legal rights that must be protected."
Students and staff are also advised to document any ICE encounters with photos, videos, notes, and agent details.
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