NEW YORK - As the death toll from the COVID-19 pandemic continues to rise, a new initiative is helping Mexican immigrants living in the United States deal with issues of end-of-life planning.
Hispanic Americans are 18% of the U.S. population, but account for 25% of COVID deaths, adding extra urgency to things like advance directives for end-of-life care.
Patricia A. González-Portillo is National Latino Communications and Constituency Director with the organization Compassion & Choices. She says the collaboration with a national health outreach program from the Mexican Consulate should help reduce disparities in end-of-life planning and health care that negatively impact the immigrant community.
"We can catch this horrible virus that can kill us," says González-Portillo. "Are we going to wait 'til that happens before we have the conversation with our family about what I want in case I die from this illness?"
Compassion & Choices has assembled a free, bilingual COVID-19 toolkit, which is available online at 'CompassionandChoices.org.'
Maria Otero, Compassion & Choice's national constituency manager, points out there are Hispanic cultural values - such as the importance of family involvement and the influence of religion - that affect behavior at the end of life. And there are cultural barriers, too.
"There's not a word in Spanish about advance directives. We don't have a word for 'hospice,'" says Otero. "So, often we are perceived like we are not very assertive to what we want at the end of life."
She adds that the pandemic represents an opportunity to start important conversations among families about a topic that most people prefer to avoid.
Because COVID-19 is so contagious, currently incurable and the symptoms can advance quickly, González-Portillo stresses that everyone should complete an advance directive.
"That clearly details what the person wishes for at the end of life," says González-Portillo. "So that family members are not left with this task of guessing, 'What would my brother want?'"
She says without an advance directive, hospitals often are forced to make decisions about medical interventions and treatment that may not be what the patient would want.
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A New Mexico immigrant advocacy group says all Americans should be alarmed that the IRS has agreed to share immigrants' taxpayer information with ICE agents because their personal data could be next.
The Department of Homeland Security and the Internal Revenue Service have reached a deal to provide sensitive taxpayer data to federal immigration authorities as part of the deportation push by President Donald Trump.
Marcela Díaz, executive director of Somos Un Pueblo Unido, called the action unconscionable and immoral.
"This is an extreme breach of trust between a federal government agency that has promised immigrant communities, for over 30 years, that it would not share information for the purpose of immigration enforcement," she said.
Díaz noted that other Americans could be next if the Trump administration decides to overturn longstanding laws that protect their personal information. It's estimated that New Mexico's immigrant population contributes nearly $1.5 billion in federal, state and local taxes.
There are close to 15,000 New Mexicans who use an Individual Taxpayer Identification Number to file their state taxes every year. Diaz said many will face a "Catch-22" -- a choice between breaking tax laws by not filing or possibly suffering even worse consequences.
"By doing it, you are exposing your family and your community to the devastation of detention, deportation and separation of families," she continued.
Díaz believes fear instilled by the new directive will have profound consequences nationwide.
"We are seeing a deterioration of that trust between the citizens of this country and the residents of this country and the essential hard-working families of this country, including immigrants, and these federal government agencies," she explained.
Somos Un Pueblo Unido is a plaintiff in a national lawsuit filed by Public Citizen against the Trump administration and the IRS.
As of Wednesday, the IRS acting commissioner was planning to resign rather than participate in sharing immigrants' tax data with Homeland Security.
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Latino media outlets in Arizona are coming together to ensure the Hispanic and Latino communities are informed and educated about their rights amid the current immigration climate.
Laura Madrid, CEO of the radio stations "La Onda" 1190 AM and 99.5 FM, said this sort of initiative is not new to Arizona. She recalled a similar campaign after Arizona enacted its controversial 2010 immigration law Senate Bill 1070, which critics said led to racial profiling.
Now as an immigration crackdown is underway, Madrid stressed information is power. The campaign consists of Spanish and English digital and radio public service announcements, social media posts and a website.
"Everybody brings in a different role and I think it is important that we open the dialogue to everyone," Madrid explained. "Social media, as you know, is very important in our society and everyday lives, especially rural areas. I wish we could do more in the rural areas of Arizona because those are always forgotten."
Madrid encouraged all Arizonans to know their rights, make a plan, find someone that can offer sound legal advice and to stay informed. The ACLU of Arizona has put together materials on what to know if you are stopped by authorities.
Last week, more than 200 people in Arizona were charged with illegal immigration activity, according to the U.S. Attorney's Office for the District of Arizona.
Raquel Terán, director of the group Proyecto Progreso, said Spanish media outlets have a committed history of covering the real-life impacts of what she called anti-immigrant and anti-Latino policies. Last November, Arizona voters approved Republican-backed Proposition 314, which would give the state authority to enforce federal immigration policy. The measure is facing legal challenges as opponents argued the law violates the state constitution since it includes no funding mechanism to pay for enforcement.
Terán added it is precisely why communities need to be in the know.
"It is a voice of confidence," Terán stressed. "By the community seeing a coalition of media outlets, it hopefully produces greater confidence and I hope it doesn't alarm folks but rather, prepares them."
Terán added independent of a person's immigration status, everyone has constitutional rights. She and other coalition members want to ensure people are aware of what they are and how to use them.
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Almost 600 children in Pennsylvania, many fleeing abuse or persecution, are being forced to navigate the immigration court system without legal representation, according to immigrant advocacy groups.
Recent federal funding cuts have left more than 26,000 unaccompanied minors nationwide without legal aid.
Cathryn Miller-Wilson, executive director of the Hebrew Immigrant Aid Society-Pennsylvania, said federal funding unexpectedly stopped four weeks ago, leaving attorneys without support to help migrant children in shelters in Bethlehem and northwestern Pennsylvania.
"All work, except for the 'Know Your Rights' work - which is the going out to the shelter and just educating the kids about the Know Your Rights work - that was the only work that was supposed to be maintained," Miller-Wilson explained. "No more representation of any kind could be done, or at least wouldn't be paid for by the federal government."
Miller-Wilson noted Acacia Center for Justice received a notice stating it could keep up the Know Your Rights visits for six more months but provide no legal representation. A lawsuit led to a temporary order restoring legal services until a hearing on April 16 to determine whether the temporary order will become permanent.
Miller-Wilson pointed out there are some remedies -- like Special Immigrant Juvenile Status, 'T' visas for trafficking victims, and 'U' visas for victims of certain crimes -- but it can take months or even years to secure temporary legal status. In her view, government support for such children is not only a moral obligation but also an investment in saving an entire generation.
"The funding is an investment in their future," Miller-Wilson contended. "We represent them. They get status, they get to go to school, they get jobs, they pay taxes, they have spending power and they become part of the American fabric."
She added her group helps people with incomes of less than 300% of the Federal Poverty Level with legal and social service needs. She argued targeting immigrants, of any age, does not make economic sense for the country, as there is overwhelming evidence the nation's economic strength and well-being are deeply connected to immigrants.
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