One Nevada group wants to help educate Nevadans on how to make people with dementia and Alzheimer's disease feel "seen" and supported, especially during Older Americans and Mental Health Awareness Month.
Jeffrey Klein, President and CEO of the nonprofit Nevada Senior Services, said since 2000, deaths in Nevada from Alzheimer's disease have increased 261%. According to the Centers for Disease Control and Prevention, Alzheimer's is one of the leading causes of death in the Silver State, and Klein said Nevada has one of the fastest-growing aging populations in the country.
"So, because we're aging and because a number of these diseases - dementias in particular - are more prevalent in older folks. Nevada is being challenged by a lack of resources for a population that is growing rapidly," he said.
Klein added his organization aims to help educate families on how to navigate and manage diseases like dementia and Alzheimer's and said everyone's experience is different and that it is important to remember treatment is not a "one size fits all" approach.
Klein explained many people have what he calls "ageism biases" - they assume an older person is not capable of keeping up with everyday tasks, or can no longer contribute to their family unit or social circle, and added that simply is not true. While dementia and Alzheimer's are undoubtedly challenging cognitive issues to grapple with, negative attitudes that invalidate an older person's feelings and abilities only make the situation more stressful, he said.
"That makes people who have those problems really worry," he explained. "So, they worry when they go to the hospital. They worry when they receive other services. Some people lack patience. And it's really hard on family caregivers, because all of these external issues increase the pressure at home as well."
Klein encourages those who have a loved one with dementia or Alzheimer's disease to seek help and said his group has workshops and resources that not only help family and caregivers manage, but also allow the person who's been diagnosed to get "comfortable with what their future will look like."
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Aging brings with it new questions on how we can live our best lives and a new book could help people answer some of those questions.
One of the most important focuses is on caregiving.
Debra Whitman is author of "The Second Fifty: Answers to the Seven Big Questions of Midlife and Beyond." She's originally from Electric City, Washington, and is an alumna of Gonzaga University. Whitman said when she reached age 50, she had a lot of questions. She noted caregiving is one of the tricky questions, especially for caregivers.
"Many people have to hire somebody in but that's extremely expensive," Whitman pointed out. "Nursing homes and long-term care facilities are extremely expensive. So, far too many people have to quit their job in order to care for somebody that they love."
Whitman noted there are more than 820,000 caregivers assisting a loved one in Washington state, more than one in 10 residents. Whitman is also chief policy officer for AARP. The organization has resources for caregiving on its website.
Whitman acknowledged Washington state is excelling in the caregiving arena in part because of the program WA Cares, which recently survived a ballot measure that would have gutted it. She said WA Cares lets people age at home.
"It offers some resources in order to pay either for the family member who has to take time off of work, to buy things to make their homes more accessible, or to pay a paid caregiver," Whitman outlined. "This is an incredible program that you have in Washington."
Whitman stressed caregivers need time off too, and people who are not caregivers can help with that.
"Sometimes just giving somebody an hour off to go get a haircut for themselves or to go to the doctor for themselves," Whitman added. "How can we as a community step in, give somebody a ride to a doctor's office? Lots of the different things that people need as they age."
Disclosure: AARP Washington contributes to our fund for reporting on Consumer Issues, Health Issues, and Senior Issues. If you would like to help support news in the public interest,
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Pennsylvania voters aged 50 and older are expected to play a pivotal role in the upcoming election, motivated by key issues, and could affect the results.
At a recent AARP Pennsylvania Women's Roundtable, suburban women 50 and older discussed top concerns, with an AARP poll revealing 60% felt the country is on the wrong track.
Betty from Chester County agreed and said coming out of the pandemic, inflation rose 8%, affecting families and the economy.
"Those prices that are out there, coming down very slowly or perhaps they're not increasing as much because the inflation is higher," Betty observed. "That is the difficult part to understand for families that have to buy groceries. Groceries are 25% more."
The AARP poll showed 94% of women are more likely to vote for a candidate who supports making sure workers get the Social Security they paid into and earned through a lifetime of hard work.
The poll found the biggest cost concerns to voters 50+ in Pennsylvania are food, utilities, health care and prescription drug costs.
Colleen from Bucks County said health care costs in Pennsylvania look promising and are headed in the right direction.
"One of the things that I'm seeing are some reductions in our health care costs, especially through Medicare, and with the opportunities to see that across the board," Colleen pointed out. "But for now, through Medicare, we're seeing that, and that's going well."
Elizabeth of Mount Lebanon in Allegheny County said leaders do not seem to be listening to communities' concerns. She added a big part of the issue also stems from the misinformation and disinformation spread by candidates, leaving people uncertain about who truly represents their perspective and interests in daily life.
"I am of Puerto Rican heritage, and I find that not only in Pittsburgh but even in Pennsylvania, during the elections, everyone's out looking for Latino votes," Elizabeth explained. "I don't think that the Latino population as a whole is listened to, except for to say negative things about immigrants."
Charlotte is also from Mount Lebanon. She recommended policymakers be more aware of the resources for grandparents who are caregivers of their grandchildren because of the opioid crisis. She added she has been taking care of her grandson for quite some time. In Pennsylvania alone, more than 235,000 grandparents are raising grandchildren.
"The opioid crisis has left a generation of children who have great needs," Charlotte emphasized. "There was settlement money provided to Pennsylvania, and I did look into that, but of the $73 million of the opioid settlement money, none of it was earmarked for these families."
The poll found 71% of women 50+ and 70% of suburban women are more likely to vote for a candidate who would help provide a tax credit for unpaid family caregivers who work to help cover the costs associated with caring for a family member.
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October is Long-Term Care Planning Month, and a few tips can help people when talking with their loved ones about this topic. Conversations about long-term care can be difficult.
Bandana Shrestha, AARP Oregon state director, said approaching the topic with compassion and care is key and noted that the 470,000 family caregivers in Oregon provide most of the care for close friends and family members, and need to be part of planning conversations.
"Making sure that you're talking early is really important, and also making sure you are involving all parties who may responsible for supporting somebody is really important," Shrestha said.
The population of people over age 65 is increasing rapidly in the U.S. and most will need long-term care supports of some kind, underscoring the need to begin planning for how that care will look.
Open enrollment for Medicare began this week and lasts through December 7th. But Shrestha noted the insurance program doesn't cover long-term care.
"There are certain provisions within Medicare where you can get some supports for being able to have short stays in long-term care facilities," Shrestha continued. "But otherwise, Medicare is really about your health care. It's your health insurance."
Oregon performed well on AARP's recent Long-Term Services and Supports Scorecard, ranking number seven in the nation. Although the state could do better in areas such as affordability, Shrestha says the state ranks high in terms of support for family caregivers.
"The reasons for that are policies like our recent paid leave law, which really is designed to help ensure that people have supports and can take time off when they need to care for themselves or for their loved ones," Shrestha said.
Disclosure: AARP Oregon contributes to our fund for reporting on Consumer Issues, Health Issues, Livable Wages/Working Families, Senior Issues. If you would like to help support news in the public interest,
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